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11-21-2010, 09:00 AM | #1 | ||
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Junior Member
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Hi there, I'm a 45 yr old female. I was rear ended in Feb. of this year & almost a month to the day, developed Trigeminal Neuralgia. Then in early Sept. started having shooting burning pains in my arms, hands, legs & feet. These pains have gotten progressively worse since then, mostly my arms & hands. My B12 levels have checked out fine.
The pains get much worse at night & I'm having great difficulty sleeping. The pain specialist wants me to start Baclofen, along with the Gabapentin that I'm taking. He's got me taking 100mg, 4 times a day, of Gabapentin. I have a hard time taking it & going to work, so I don't know how I'm gonna handle the Baclofen. I'm waiting to have an MRI & the pain specialist said he wouldn't rule out MS just yet. Does anyone else have pains that get much worse when lying down to sleep? I feel like the pain is constant, burning & achy. I don't seem to have any vision problems, is this not a major sign of MS?? I guess I'm just looking for other MS stories & experiences, as I realize it affects everyone differently. |
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11-21-2010, 09:32 AM | #2 | |||
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Grand Magnate
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I was DXed in 2002. I have never had any vision problems. My EPs, LP, History, MRI are all Classic MS. When I lay down get burning flashes down arm, pokey like with an ice pick joint pain in elbow, Shoulder joint gets pains and if I roll it, makes pop/crack sound. Neuro has prescribed Gabapentin(generic Neurotin(600 mg I cut in half tabs) or Hydroco/Acetam 5/500(generic Vicotin. I take @hour before bedtimes. Gaba. leaves me feeling drug hungover next morning. Vicotin doesn't.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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11-21-2010, 09:43 AM | #3 | |||
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Elder
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I got my first MS symptoms after a car accident. scary!
I feel worse with pain when laying down. I am not sure if its that my mind isnt distracted by the buzzing house, or that I have time to think and concentrate on my body, or that my actual body doesnt like the lay down position. Have you tried mental relaxation? ajusting pillows under and around you to comfort you? distraction? or just getting up for a bit? i hope you feel better.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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11-21-2010, 01:28 PM | #4 | |||
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In Remembrance
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Welcome, Jiggered , great to have you here. I'm one who doesn't like meds that make me wobbly and out of it. I don't have pain that I can't handle, though, unlike some others here.
Come in and join us and we will try to get you through the Diagnosis process..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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11-22-2010, 09:45 AM | #5 | ||
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Junior Member
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Quote:
I've read that for some reason laying down does make the pains worse. Bummer I'm starting my Baclofen today. I'm gonna take half a tab, just to see how it goes. I have to work tonight ( 11 - 7 am), so I'm gonna lay down around 2ish. I hope I get a good nap with the Baclofen. Thanks for all the advice, I really appreciate it. Hope u have a great day. Leslie |
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11-22-2010, 11:11 AM | #6 | |||
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Elder
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Would I have gotten worse without the car accident? probably. would it have taken much longer? probably. I think the accident pushed me over the edge by forcing my body to react to broken bones. once your immune system ramps up it can really flare MS. I hope you feel better quick.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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11-22-2010, 05:35 PM | #7 | |||
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Magnate
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I too know of a man who was diagnosed with MS after a car accident. Just by chance. They ran an MRI to check for damage from the accident itself, and lo and behold, MS type lesions. It explained a lot of mild neurological symptoms he'd previously passed off (he's since developed more, unfortunately).
With that said, an accident or a very stressful period can be the catalyst for MS to come to the fore-front for sure, or to result in an inflammatory period during which symptoms are more pronounced, or show up new. I wish you luck in your search for answers. It may or may not be MS when all's said and done, but regardless of what they find, I do hope you receive some relief from your symptoms (as a fellow Trigeminal Neuralgia sufferer, I feel your pain, literally ) in the near future. Stay in touch with updates and come here if you need help getting through the limbo period. Edit: I notice you're in Edmonton, AB. I tried taking Gabapentin for my T.Neuralgia, found it did nothing. If you'd like to send me a private message, I'll tell you all the fun stuff I've tried, and what's worked/what are my known triggers. You may want to check out the Trigeminal Neuralgia forum apart from the MS forum on NeuroTalk as well, if you didn't find it already!
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | SallyC (11-22-2010) |
11-22-2010, 08:44 PM | #8 | |||
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In Remembrance
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Stress is definately a big MS Trigger....either mental or physical stress.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | dmplaura (11-23-2010) |
11-27-2010, 10:51 PM | #9 | ||
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Junior Member
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