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Old 11-25-2010, 09:20 AM #1
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Sleep. the great, elusive bully. Either I am getting to see him too much, or too little. I get really angry when someone calls at 6am! or at 11pm. I work hard to get to sleep, and stay asleep, and once an event happens, its over. I may as well get up.

Have you tried meditating? resting can be a pick up as much as a nap. Try the good night toes and ask your toes to relax, and good night ankles and ask your ankles to relax till you get to your hairline. I find that sometimes faking it helps. I mimic the breathing pattern I would display if I was asleep already and allow my body to sink heavily into the pillow. even if I feel stupid I keep going. Frequently this will tip me over the edge. its like I cant get my mind to SHUT UP! and I have to force my body to take over its role as a parent.

I hope you feel better.
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Old 11-25-2010, 12:37 PM #2
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I think I fell asleep around 6am or a little after that.

I woke up a couple of times, but pretty much was able to sleep till about 10 minutes ago. (1120am)

So, I probably got about 5 hours. I really hope I get some sleep once I get home later today. It's really strange. I fall asleep whenever I sit down and try to do something like read or crochet or knit, but if I lay down with the specific intention to sleep...nothing. Even after being awake for nearly 20hrs.

and I just woke up to some really stiff spasticity. Owwwwwwwwww!

stupid MS. I swear it's doing this to me on purpose. Making me sleepy and in pain.
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Old 11-25-2010, 12:56 PM #3
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Default I know what you are talking about...

and I am now Bipolar too as well as having MS. My neuro's nurse told me she often sees people with MS becoming Bipolar in time. She did also state there is no definite link.

I'm not saying that is your problem... MS does affect sleeping patterns. I would be up nearly 3 days straight with plenty of energy unable to sleep. Everything seemed doable.

This past Summer I became depressed...I reminded myself of the people in the Seroquel XR commercial. I was put on this drug and it amazed me how many problems were from depression and not what I chalked up to be MS symptoms.

Too, I can sleep on Seroquel Extended Release...Seroquel XR. No more Klonopin -- 3 to 4 mg nightly and still not sleeping. I'm now off Klonopin completely.

I am in the kitchen cooking meals I loved to make before the MS started in '92.

I don't know what the answer is for you. See a knowledgeable psychiatrist. Do NOT mess around with neurologists or your family doctor trying to medicate you.

Take care.

Last edited by 0357; 11-25-2010 at 01:15 PM. Reason: Wording
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Old 11-25-2010, 06:45 PM #4
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I dont think I'm depressed, or bipolar. I just dont sleep much apparently. It's weird. I think I'm actually happier now than I was 5 years ago. (got a boyfriend, live in a nice place, access to almost all the yarn I can get my hands on to crochet or knit with) Now that I know what's wrong with me with the MS crud and all. Hate the MS, but I cant really do anything about it.

I think I probably just dont get enough exercise, so I'm not usually tired enough physically to fall asleep.

I managed to get a little bit of sleep, once I vented here. Took me about another half hour maybe, to fall asleep. Then I got woken up an hour and a half later when my dad got up to take the garbage out. He dropped the cover to the kitchen trash on the floor, which is directly above my head. That's what woke me up. (we have trash service on thursdays, even if it's a holiday) I managed to fall asleep again.

I'm home now, full of tasty steak, mashed potatoes and mostacholi (penne noodles in a tomato meat sauce) and a huge bowl of spumoni. (biggest bowl I've ever seen that restaurant serve. Owners must not have been watching things as close as they usually do)

I'm just checking my email and then I'm going to go lay down with a movie on the tv. I'm hoping to be comatose in the next half hour or so. If I can stay awake long enough to actually get into the bed. I'm drifting off as I'm writing out this post. Better go before I end up asleep on my desk and wake up with an imprint of the keyboard on my forehead.
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Old 11-25-2010, 06:55 PM #5
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Default Erin,

I hope you get some more rest tonight. It is the MS that does that to me. I will go for several weeks as you describe, hardly sleeping. But lucky for me right now, I am in the time that I AM sleeping. I treasure this time because I know it won't last. I just take it when I can get it!

Sleep Tight!
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Old 11-25-2010, 07:08 PM #6
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I didnt even get out of the computer chair before I fell asleep. I just woke up from the surprise attack of a nap that got me after I posted that last message. Now I feel wide awake again for a few minutes. Think I'll take advantage of the sleepies and leap into my bed quickly now. Dont think I'm bothering with the dvd I was planning on attempting to watch tonight. I'm just going to bed.
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