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Old 11-25-2010, 01:42 PM #1
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Thumbs up CCSVI Update!!

My Friend Sue's Liberation procedure update.
A Success, so far..

Quote:
A note to say hi and let you know I am back home. It was a rough trip but successful. had blockage in left jugular veins and azynous about 75 percent,50 pecent on left side, said right side looked good but did get angioplaysted on the left side and azynous veins. today I do not have to use cane to walk as left side is getting stronger about was ready to graduate to a walker then w/c as left leg was getting so bad but now it is getting stronger. Incontenance is so much better, double vision is gone, dizzyness is still there but hope that will get better as times go on. cognitive seems better, attitude is so much better even though I am still a b--ch.lol Fatigue seems to be improving overall am totally amazed and so thankful for the results I have seen and hope to see more improvements as time goes on. I know the neuros will probably say this a placebo effect but it is not as how can inconstinance be a placebo as that is so much more improved,

Trip was rough but got through it. Son was fantastic, treatment was billed to medicare . Don't know how much they will pay but will find out.

Now it is time to heal and let my body get use to blood flowing through the body again. Wish everyone could have this done and see some improvements. Met couple from Canada that was going for treatment and couple from Virginia so many are coming from all over to get this done. Hope it will be for all who has MS. Will not be taking Tysabri again, will keep taking LDN for it now and nothing else.

After I get more rested will let you know of improvements. Did not get video of before and after as I was sick that morning and not up to taping will do a video at Christmas as update as son has video camera that he can tape instead of cell phone. Hope you are doing well.


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Old 11-26-2010, 11:17 AM #2
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love it, Sally. What part of the country?
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Old 11-26-2010, 11:51 AM #3
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Quote:
Originally Posted by Aarcyn View Post
love it, Sally. What part of the country?
New York, I believe she said Albany. Her DSon took her and is paying what Medicare doesn't pay.

I'm anxious to see if the improvements hold and keep coming. I think that eventually all angio patients will need a stent?

Praying and keeping fingers crossed for Sue and also for Lady's upcoming procedure.
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Old 11-26-2010, 01:35 PM #4
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Thank you for the post, Sally! I had an MRV Wed, will find out the results on 12/3. I may need to ask for more info from your friend as to the procedure and how she found the Dr in Albany.

I hope Sue does better n better

Linda
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Old 11-26-2010, 02:52 PM #5
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Sally,

i feel dumb asking this Q but i'm confused.
we're talking about clearing out blockages in the jugular veins?
if we are, how does that connect with MS and sx's?

i am not seeing the big picture here but glad sue is doing so much better.
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Old 11-26-2010, 03:20 PM #6
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Here is a website that should explain it all, Judy..


http://csvi-ms.net/en
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Old 11-26-2010, 09:43 PM #7
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Basically, there's a belief that the blood not draining fast enough is resulting in iron build up in the head, which triggers the auto immune response.

That's the simplest way of putting it I think, correct me if I'm wrong. MS is the result of a vascular condition acting as the catalyst to kick start the disease process in some folks.

There's probably many walking around with CCSVI without MS, but the important thing is they're finding that many with MS have narrowing of the jugglar veins.
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Old 11-27-2010, 08:55 AM #8
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like the built up pressure from the veins not being able to drain correctly causes a reflux or backwash of blood back into the brain, and it drops off the heavy iron deposits, which are what show up as lesions. That is why the lesions tend to group around the ventricle and not too many other places in the brain.

Arteries deliver blood to the brain, the veins carry the used blood away. This is why there is so much debris in the veinous system.

I want so badly for this thing to be an answer. I am cautiously optimistic.
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Old 11-28-2010, 01:15 AM #9
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Thanks Sally

When I get mine unblocked next month, I will give honest answers to any questions that you ask. You know I am an honest and open person when it comes to any health issues.

I am blocked in the left jugular, I was tested with Dr Zamboni's protocol. The Azygous vein in the chest, which affects mostly balance, walking, B & B (our plumbing) issues, spinal, arms, hands, legs and feet, will be tested and treated if needed during my Venogram/Angioplasty (Liberation Procedure).

My Cranial veins in my head tested fine, TG. If they were blocked I would need to see a Vascular Surgeon.

I am going to a Board Certified Interventional Radiologist, MD who is well trained, and has the new equipment to test and treat me.

I'll keep you all updated when I get it done, and if you want to know more.

**Sue, I am praying that you see improvements everyday. Thanks for being one of the pioneers in this procedure.
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Old 11-28-2010, 12:52 PM #10
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Lady, that's awesome they're doing a full check on you, and following the Zamboni protocol as well!

I'm so excited for you and to hear how things work out
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