[KYSandi]

Hi - lots of information on this site! I have had right leg pain - apparently exactly like one would with sciatica pain from back injury - for eight months. I was put through many tests - and my lumbar is fine. Two months ago I noticed my vision changing, I ignored it as I was not used to taking any medications and now was on pain pills, muscle relaxers, motrin, and Lyrica. Big mistake - I woke up and was blind for 5 seconds. Went to doc, and you guessed it - bilateral optic neuritis. My brain MRI was negative, actually EVERYTHING has been negative - including the nerve conductor test of my leg! I am to go to Neuro this week. Apparently they will do more MRI's of my C & T-Spine and a spinal tap. Anybody had these symptoms??

[Kitty]

My very first symptom was leg pain and then total numbness in both legs that lasted about 6 weeks. I thought it was a pinched nerve. Went to the doctor but they had no clue.

Two years later I had a severe case of double vision. After many doctor, neuro and optho appointments it was determined that I had MS.

Thinking back...and after alot of research on my own...I figured it out that the leg numbness was really my first major episode or exacerbation.

I've had Optic Neuritis since and other bouts with numbness in different parts of my body. My right hand and arm (below the elbow) is totally numb and has been for several years.

I didn't have a lumbar puncture. Just an MRI with contrast.

I hope your next appointment yields some sort of diagnosis for you. I know it's hard to wait...especially when you know something is wrong and the very people who are supposed to be able to tell you what it is are stumped, too.

There are lots and lots of people here who have been in the very place you are now. Most of us have been at some point. And we know how frustrating it can be. Hang in there and keep coming here. It helps to know you're not alone.

[Snoopy]

Hello KYSandi and welcome to NeuroTalk.

Has anyone considered medications as a source of your vision problems? I don't know all the medications you are on but you did mention Lyrica and a side effect of Lyrica is vison changes.

[SallyC]

Welcome KYSandi, nice to meet you.

Sounds like they are testing you for a neurological disease. I hope you get answers soon.

Let us know what your other tests show, please and Take care..

[Friend2U]

Waiting to find out is a very hard part of it all! Here is a thread that did a good job addressing this...IMO...
http://neurotalk.psychcentral.com/thread139112.html

There are some good comments on this thread,including the one that follows:
Originally Posted by Dejibo
"I had sensory problems for about 20 years before I started to have some issues with balance and vision. it was frustrating because every MD i mentioned it to thought me to be whiney and looking for drugs or a way to quit work. I LOVED my job and was quite upset when I was forced to stop working. I simply knew something was wrong and wanted to know why.

Sometimes in this life, we get to know why. A car runs over our foot and its painful. we get to know why. A loved one developes a disease and fights for their life. we dont always get to know why. Some folks die from cancer and some folks live. We dont always get to know why.

Its very hard to sit "in the meantime" That period of time that is neither here, nor there. its in the meantime that we learn our greatest lessons. Lessons of patience, lessons of research, lessons of tolerance, lessons of strength to stand up and refusing to be dismissed anymore. Lessons of lonelyness and not fitting into the left or the right. its a time filled with strife, and grief, and frustration. I hated the meantime. I wanted answers! and I wanted them instantly. Why me?! Why now?! I struggled hard against the meantime. now that I look back, it was rich with lessons.

I hope you are able to get some answers soon. its frustrating to not know for sure."

[Dejibo]

was going to chime in but cog fog seems to be heavy upon me this week. I am glad someone pulled up an old chestnut from me tho.

Its hard to wait. its hard to be dimissed. its hard to have an invisable problem. When you have a broken arm, folks say "oh she cant lift that heavy bag, her arm is broken!" but when they cant see it, they think that you can simply think your way out. its like a will power issue, and not a central nervous system issue. "you just need more exercise, or meditation, or a better attitude" I call that "stinkin thinkin" dont let them put that aroma off on you.

hang in there.

[KYSandi]

I was not expecting a whole lot from this site - it has exceeded every hope I had! Not that I don't wish everyone of you to be pain free and in perfect health - but I will admit, it is nice when you are not alone! Thank you so much for everyone's reply. I am not able to reply individually at this moment - but you can bet your booty i want to and will (lucky enough to make it to work today!) Thanks x 1 million! You all have given me fantastic advise and I can't wait to look more into each of your lives and the ups and downs (hopefully way many more ups!!!) I am learning the site and actually am not 100% sure where this will end up!!! Have a great day everyone! I need to figure out how to "friend" folks too so we can keep in constant touch to make each others day a little brighter! Thanks again all!!!!!