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#1 | |||
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In Remembrance
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Add me to the EBV=MONO=MS club..
![]() Have they come up with anything to conteract it and turn MS around? Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | dmplaura (11-27-2010), Friend2U (11-28-2010), Grammie 2 3 (11-28-2010), Koala77 (11-27-2010), Lady (11-27-2010) |
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#2 | |||
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Legendary
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I never had EBV and the only contact I had was when my daughter caught it at age 17. I was diagnosed just after her birth, so I'd already had the disease a minimum of 17 years by then.....BUT..... I did get rubella about 8 years pre diagnosis, and that was another virus they threw around back then (in the 70's)
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What is good about today's research and the products of that research, is the fact the maybe our children, grandchildren and great grandchildren might be spared what we've gone through.... and for me it's been 33 years of symptoms, consultations and probing. I didn't do the injections but many others have, so that's years of sticking yourself with something you don't know for a fact will help you, but I do believe you have to put your trust in something. Unless I accidentally walk in front of a bus, then I'll probably have to put up with more of the same for another 10, 20 or more years to come. I'd like for my offspring to be spared the same.
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Eastern Australian Daylight Savings Time and my temperature . |
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"Thanks for this!" says: | dmplaura (11-27-2010), Friend2U (11-28-2010), Grammie 2 3 (11-28-2010), Lady (11-27-2010), SallyC (11-27-2010) |
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#3 | ||
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Member
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what i don't understand is that over 95% of the general population has had the EBV.....so of course most MS patients have had it also, it is just that common.
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"Thanks for this!" says: | Friend2U (11-28-2010), Grammie 2 3 (11-28-2010), Koala77 (11-27-2010), Lady (11-27-2010), SallyC (11-27-2010) |
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#4 | |||
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Senior Member
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I have never been diagnosed with EBV....but, many times in by busy life, I've suffered through illness because "moms don't get sick"!!! So who knows... I don't know if it would have been possible to have mono and just eventially get over it...or if it would have gotten be down so much I would have HAD to go to the doctor for it????
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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#5 | |||
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Magnate
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When I got hit with mono, I got hit very hard.
2 weeks bedridden. I still remember my Mom had to help me the few steps to the washroom, and I spent the majority of the time sleeping. Even 30 minutes out of bed was too painful and fatigue inducing to bear. I know folks who've been the complete opposite though, just feeling 'unwell' for several months before being informed it was mono, etc.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#6 | ||
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Member
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Daisy is right, as far as I remember from statistics read. The vast majority of all people in America (can't speak for abroad, probably the same) have endured EBV, sometimes referred to as "mononucleosis". I had it in college, a typical place to get it. Later, it
was shown to have left a signature on a viral screen test. Nevertheless it could be one of the triggers for MS, but most people fight it off and don't get MS from it. I remember I had a big boil on my neck from it, but when I got over it, it was gone for good. And I had MS symptoms before I had EBV. |
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#7 | |||
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Legendary
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EBV has been tossed around for 3 decades now (or more) so I tend to believe it IS a virus that sets the disease off. Maybe it's not EBV, maybe it's not Rubella... nor Distemper, or any of the other viruses that they've targetted over the years, but I think from this and many similar articles, we'll eventually have to accede that a virus of some kind, is behind the trigger. Maybe it is the EBV......maybe not, but it's good to know that all of these preceptors that we've heard about for decades now, are now being fully investigated.
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Eastern Australian Daylight Savings Time and my temperature . |
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#8 | |||
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Senior Member
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I was tested for EBV about 10 years ago to see if I have had it in the past. It showed that I did indeed have it in the past, but it showed it was inactive at the time. The doctor said it was encapsulated, dormant.
It remains in the body for life, once exposed. I don't remember having Mono, but my doctor said some people just get a bad cold from it and don't realize it was not a cold virus but the EB virus. Yes 95 percent of the population has had it at some point in their lives. Some get it bad and end up with Mono. Just like some have a bad case of the Flu and others get it minor case, like a bad cold. We are all different. As a virus I don't know how they can eradicate it from out lives. Viruses are hard to treat, or not treatable, and run their course. They can't cure the common cold virus after all this time. Perhaps a vaccine, but even the Flu vaccine is not stable enough to stop some Flu's that mutate. People that had Rubella, can still get shingles, even those who had the vaccine. I hope they can do something to stop EBV, but even with today's modern medicine it seems they can't do much to actually destroy it, it may stay dormant, but can reactive just like the herpes viruses and PR, by molecular mimicry. Good research article find Koala, let's all hope they continue to work on it. Mono is bad enough and MS is a pain in a donkey's hindquarters.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. Last edited by Lady; 11-28-2010 at 03:24 PM. Reason: my spell checker is on a nutty holiday |
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#9 | |||
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Senior Member
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I actually wonder if my MS was triggered by hystoplasmosis http://www.dhs.wisconsin.gov/communi...oplasmosis.htm
that I contracted when I was 17. I know what it was because it happened to show up in my eye and I had to have laser surgery and lost my central vision in that eye. Not long after that I began having very bad headaches. Had Never had a headache before that. The doctors could not explain why. They said it was unrelated to the eye problem. Also, I began having balance problems. Hind sight is always easier. Now I definitely think that was the first MS symptoms. Hystoplasmosis is not a virus, but I sure have a gut feeling that it is what activated it. But I could be wrong and it could have just been a coincidence. But definitely think that is the same time period it all started. ?????????? ![]()
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~ Friend2U . . HANG IN THERE! If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici MS/dx2006 BETASERON (Quit May 2011) COPAXONE (Began June 2011) |
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