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Old 09-25-2006, 10:27 PM #20
ewizabeth's Avatar
ewizabeth ewizabeth is offline
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Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
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I am upset because I think I'm having a flare up. I am not supposed to get those anymore, just because.

I have terrible pain off and on, from spasticity, I think. I started Baclofen last week, it helped for a few days, but today was another miserable day. I can't take steroids, because they make my blood pressure go sky high. I'm afraid of Tysabri, because I would likely be the one to get the PML on the mono-therapy.

I'm trying to finish my college degree, and now the Baclofen is fogging my thinking. I called the college disability department today, and that really upset me. I can't handle these setbacks. The woman there seemed to talk down to me, so I'm passing on it, not calling back. I will tough it out, they can just put up with me, and wonder why I am not the super student anymore.

I feel like I should be in control of this really stupid pathetic disease, but I'm losing ground anyway.

I am not my cheerful self lately.
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RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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