What Sally said. I hope your better than your old self soon!

Thank you all.

I had to go to the doctor again today for my weekly blood draw. They watch my clotting factor to make sure I don't get blood clots. I'm doing very well, TG, considering..

I just read the first procedure report and found out I had so many blockages, not just the left jugular.

I had balloon angioplasty in about 8 major places not seen on the Doppler Ultrasound, only during the dye infusion. No flow was seen on left, that I knew, but the other stenosed veins were in so many places it was unreal.

Even my chest Azygous had closure at the top curve (Azygous is shaped like a candy cane). No wonder the procedure took so long. Besides using different size catheter - balloons, my Dr had to use different style balloons.

I remember watching him thread them in and out of the opening, like a plumber. LOL Amazing.

So I just have to rest and heal ALL of these places that were zapped. I can do that.

I hope to find more improvements over time. I'll let you all know.

Happy New Year 2011 to all of you.

I hope to find more improvements over time. I'll let you all know.

hmmm. that particular sentence implies that you have experienced some
improvements.

haha. reading between the lines! Rest well Lady!

I too am wondering what if any improvements you have noticed. I am so hungry for info about folks that have undergone this proceedure, even if its news that says "nothing changed" or "tiny changes" or "went backwards and now have big sx" Can you tell us what has happened with you?

I was so thrilled when someone posted a video after a year the other day on FB. She has had a huge increase in sx, and is struggling back to the same level she was at a year ago, maybe more. She has had the proceedure done 2x now. It was refreshing to see someone post about an increase in sx. many are only posting the good videos and are worried about scaring us if they post bad things, or scary things.

I would love to hear your story when you can. Even if its no change or tiny changes or going backwards.

I have a lot of healing to do. That is my priority.. BUT, I am much warmer and have not had my daily morning headaches and a few other goodies, like no numbness or tingling anymore. I'll get back to you all soon.

30 years of junk to clean up takes time.

I am better now than before the procedure. I had 39 things on my "Want List." Some minor things are better, my big five "Wants" I'm working on. I'm still sore too-they did a lot of work on me.

Someone famous said: "I'll be back."

Oh HUGS LADY!! May your healing go well~

I thought I left a post, and there is no urgency..but I am seeing my MS doc January 24th and I want to bring up some "vascular" issues. My PCP knows and cannot order a MRA test. But what else should I ask for?

I am just not sure what your history is..and how you went about getting this proceedure.

Best to you.. keep us informed as you are able~

Jan

you have been thru so much.
i wish you nothing but the best in the coming yr.

whenever you're back can i ask how this all started for you?
how did you know? how did you come to decide on this procedure?

No numbness or tingling???? Dare I say WOW?? Keep at it Lady. Awesome.

I just found out that my sister's best friend had the surgery for the CCSVI (sister's best friend also has MS) I need to talk to her one of these days and find out if she had any improvements after the surgery.

Finally, someone I know personally has had the surgery that I can talk to and ask questions...and see for myself in real life if she's had any improvements, rather than just on a youtube video.

Let us know please, Erin.