Heal up, Lady. I hope you have all of the improvements that you desire - especially the big 5.

nOthing Thanks for keeping us updated as you heal from this Miss Lady:hug: In Canada there is new articles on this everyday..One article came out in our major paper caught my eye" M.S sufferers owed a explanation"....I think of this as I try to keep going.I phoned Multiple Sclerosis Society of Canada weeks ago for answers on why no real progress on this..Since we are on the same team...Well they never returned my call hmm guess my donations of money and being in 3 studies means nothing.I am just very sad as I am forced to stay in this chair day after day.

Thank you. :)
@ Jan, and Nurse Nancy..and all,
All of the best well-known IR doctors, that we hear about, have long waiting lists. You call them they take your name and number and call you to come to them for a 3 -D Color Trans- Cranial Doppler Ultrasound using Dr Zamboni's protocol. No script needed. IR is a MD.

You don't really need an MRV. Expensive and the US tells you if your blockages meet the criteria for CCSVI. If you want an MRV then get your script from your PCP for Venous Disease. Neuro's are not on board with this, very few are. It is not their expertise.

I told mine I plan to get it, even if by underground network. But that was not the case. All legal and board certified for CCSVI drs now. Three years this is out. Google CCSVI and MS. Or watch Youtube video's CCSVI.

Forget MS, this is for Venous Insufficiency ( but the bonus is MS improvements). Blood can now drain from your head to your heart again and pick up fresh Oxygenated blood. Iron leaves the brain too which they say could cause the lesions and progression. (jury is still out) but iron is bad in the brain.

More oxygen, less fatigue, more brain function, more heat tolerance, warmer extremities, and so on. Everyone gets different benefits... better vision or hearing is some.

I don't have back of head, shoulder or neck pain anymore. MS Hug is much better, warmer body, lots of more odd stuff leaves over time. You have to heal first. If your veins are ballooned, heal, then count your blessings. They don't come right away.

@ Jeep, Canadians are crossing the border and going to California or Albany NY, if you can afford it. They can only write it off on their taxes, the health system won't pay for it at this time.

I paid for mine and I have ins. Because mine is not par with NY. It was worth it, I'll write it off my taxes. Or send it in for out of network procedure. I did have blockages. Even with the good, the bad and the ugly stuff..like sore groin..sore neck a few days.. etc. I'm still glad I had it done.

It makes sense to me, blockages are thought to be congenital (happening in the womb) with CCSVI people and other triggers and over time it gets worse and so do we.

It's a coin toss. People have to believe or not. They all have a right to their opinion on this, or the drugs. But investigate first, then make a decision.

Some Medicaid or Medicare will pay. Find out. Venous disease problem.


.

Even though I am not sure about this being the "magic" that some MSers claim, I'm thinking about it because of the pressure I get in my head when I get up from a sitting position...I feel as if I have a helmet on that's too small, my hearing gets bad, and I have to shake my head for it to clear...I heard of this described as a positional migraine.

:O I didn't know there was a name to this, this happens to be mainly at work when I've been sitting and typing (at a computer screen) for a very long time.

Thanks for the info! :hug:

Lady is wise.

When you check out CCSVI on youtube you may find that details in one of the more popular clips seems familiar to you for some reason..... :winky:

I hope you're recovering well, Lady. :hug:

Which one....there are sooooo many??

Jacksonsmommy, I am not on youtube. I did not make a video. I don't even own a video camera or cam. Not me my dear.

Stop getting all excited Sally. I would let you all know if I did a video.

Thank you Kitty.