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-   -   Leaving tomorrow for CCSVI Procedure (https://www.neurotalk.org/multiple-sclerosis/140175-leaving-tomorrow-ccsvi-procedure.html)

SallyC 01-14-2011 10:39 AM

Quote:

Originally Posted by Lady (Post 734836)
Jacksonsmommy, I am not on youtube. I did not make a video. I don't even own a video camera or cam. Not me my dear.

Stop getting all excited Sally. I would let you all know if I did a video.

Thank you Kitty.

Oh, I thought it was a video of Jacksonsmommy..:rolleyes:

Kitty 01-14-2011 10:48 AM

I wish someone would make a video after 3, 6 and 9 months. The ones immediately following the procedure are good but only show the people who saw immediate and miraculous improvement. I want to see a more realistic scenario. It's not a cure and I'd hate for people to go into it thinking that it is.

Dejibo 01-14-2011 01:49 PM

Quote:

Originally Posted by Kitty (Post 734891)
I wish someone would make a video after 3, 6 and 9 months. The ones immediately following the procedure are good but only show the people who saw immediate and miraculous improvement. I want to see a more realistic scenario. It's not a cure and I'd hate for people to go into it thinking that it is.

ME TOO! I am so hungry to see folks at intervals, not just the post surgical glow. Many times folks back slide and go into relapses and worry that posting such things would make the rest of us nervous or not want to do it, but I would rather have the truth, than sit and guess what happened later.

jacksonsmommy 01-15-2011 11:46 PM

Quote:

Originally Posted by SallyC (Post 734888)
Oh, I thought it was a video of Jacksonsmommy..:rolleyes:

Sally is right. I'm one of them....

SallyC 01-16-2011 12:57 AM

OK, brat, which one are you?:D

Kitty 01-16-2011 08:56 AM

JM, I'd love to watch yours.....but I'm not lookin' at all of them that are posted on there. There's just too many. Give us a link! :) Did you have the procedure?

SallyC 01-16-2011 11:53 AM

Well, Kitty put it nicely as she always does.:)

I'm the impatient one.:D Are you Dona, Mona, Lucy, jayne, etc.......?

jacksonsmommy 01-18-2011 04:39 PM

Quote:

Originally Posted by SallyC (Post 735384)
Well, Kitty put it nicely as she always does.:)

I'm the impatient one.:D Are you Dona, Mona, Lucy, jayne, etc.......?

Amanda!
(I have got no connection to the organization that filmed and put out the video. I got asked if I wanted to do the video less than 5 minutes before filming started. )

SallyC 01-18-2011 09:10 PM

Thanks Amanda, here is the link..

http://www.youtube.com/watch?v=f2DiMMNPnoo

You look wonderful and i'm so happy for you.:)
I'm thinking that maybe it's a little late for me to have this procedure. And you did have to have a stent, too. Giving it some deep thought though!

Thank you so much for sharing your tape with us and I hope you keep getting better and better.:hug:

Dejibo 01-18-2011 09:22 PM

Thank you for sharing your story. how are you doing now 10 months past treatment?


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