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Old 12-19-2010, 03:53 PM #21
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Cognitive issues for sure.
Even with spasms making walking & standing difficult, if I could think clearly, remember things and speak the words I'm thinking of, I think I'd be able to work again...
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Old 12-20-2010, 12:16 AM #22
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Most days it's fatigue but sometimes when I don't have anything planned, I guess becasue of fatigue, numbess in my legs
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Old 12-21-2010, 08:07 PM #23
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Quote:
Originally Posted by dmplaura View Post
My burning mouth syndrome. By far my worst lasting symptom.
I have been having this burning tongue thing lately....it started as a tingling tongue, but now my tongue feels like I have burned it on hot cocoa or something. Is this what you are talking about? I thought maybe this was a side effect of the neurontin I recently started.
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Old 12-21-2010, 08:24 PM #24
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I'm freak'n after reading all the problems you's have. I'm so sorry to hear all the MS effects.

I'll go with all the sensory i've lost - all of it. Hands if I can only have 1 area feel again. At this rate, by next summer pleasuring a woman is over
Life will be hard living after that happens. Cheers.
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Old 12-22-2010, 08:25 AM #25
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Quote:
Originally Posted by daisy.girl View Post
I have been having this burning tongue thing lately....it started as a tingling tongue, but now my tongue feels like I have burned it on hot cocoa or something. Is this what you are talking about? I thought maybe this was a side effect of the neurontin I recently started.
Yes, this is basically it. Only I have mine in the tongue/gums around my molars at the top of my mouth, and in my cheeks. It's dreadful!

It could be a side effect of Neurontin though in your case, I'd look it up, or ask your pharmacist.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 12-22-2010, 08:57 AM #26
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Originally Posted by dmplaura View Post
Yes, this is basically it. Only I have mine in the tongue/gums around my molars at the top of my mouth, and in my cheeks. It's dreadful!

It could be a side effect of Neurontin though in your case, I'd look it up, or ask your pharmacist.

Is it constant for you? My is worse at certain times through out the day. Is it related directly to MS? Is it consider parathesis?
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Old 12-22-2010, 02:38 PM #27
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Being able to drive again, makes me dependant on others, not a very good feeling. Not a symptom, just one of the problems.
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Old 12-22-2010, 03:33 PM #28
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Being able to drive again, makes me dependant on others, not a very good feeling. Not a symptom, just one of the problems.
Yeah, that too!!!
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Old 12-22-2010, 09:38 PM #29
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hands down it would be my muscle pain.
i can't even remember anymore when i had a day without pain.
what a joy it would be.
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Old 12-22-2010, 11:00 PM #30
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Quote:
Originally Posted by daisy.girl View Post
Is it constant for you? My is worse at certain times through out the day. Is it related directly to MS? Is it consider parathesis?
It's constant for me in varying degrees.

If I get a good night's sleep, I wake up and I'm good. If I'm low on the stress meter, the sensation is almost completely gone upon waking at times.

If I have stressful days, not enough sleep, or if I stay up late... the worse I'm treating my body, and the longer I remain awake, the worse the sensation gets.

Klonopin (Clonazepam) is the only medication that's helped me to dull this ridiculous pain (and it is quite painful in my case). Chewing sweet peppermint gum for me really helps too, and the pain's decreased when I'm eating/drinking.

BMS (Burning Mouth Syndrome) isn't overly common in MS, it's also very misunderstood in general, and it more often affects women, especially those going through menopause, or post menopausal.

In MS, it can be the result of damage to the brain stem, but it can also be the result of nerve damage in dentistry to put it in another context.

A very unusual symptom, but I've talked to others with MS who also share this unwelcome symptom. My neuro actually treats another MS patient with the condition as well.
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March 2008 - Multiple Sclerosis DX
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05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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