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Old 12-23-2010, 08:32 AM #31
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Quote:
Originally Posted by dmplaura View Post
It's constant for me in varying degrees.

If I get a good night's sleep, I wake up and I'm good. If I'm low on the stress meter, the sensation is almost completely gone upon waking at times.

If I have stressful days, not enough sleep, or if I stay up late... the worse I'm treating my body, and the longer I remain awake, the worse the sensation gets.

Klonopin (Clonazepam) is the only medication that's helped me to dull this ridiculous pain (and it is quite painful in my case). Chewing sweet peppermint gum for me really helps too, and the pain's decreased when I'm eating/drinking.

BMS (Burning Mouth Syndrome) isn't overly common in MS, it's also very misunderstood in general, and it more often affects women, especially those going through menopause, or post menopausal.

In MS, it can be the result of damage to the brain stem, but it can also be the result of nerve damage in dentistry to put it in another context.

A very unusual symptom, but I've talked to others with MS who also share this unwelcome symptom. My neuro actually treats another MS patient with the condition as well.
Thank you so much for all this information! Mine too is better when I first wake up and gets worse through out the day. Eating/drinking also makes it feel better. I see my neuro next week, I sure hope this isn't a symptom that will stay with me.....I will ask him about the Klonopin.

Merry Christmas!!
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Old 12-23-2010, 09:59 PM #32
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Glad the information was helpful, and a Merry Christmas to you too daisy.girl. I hope you're able to find some relief from the burning.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 12-29-2010, 02:08 PM #33
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I have actually thought about this one when I was first diagnosed...
and even though I have gained an additional 7-10 symptoms than when I started... It still remains the same...
The vertigo!
That blasted rollercoaster ride from hell.
I HATE IT!
I can deal with falling and crawling
I can deal with pain everywhere, even the cranial
I can deal with an urgency of having to go to the bathroom
I can deal with muscle spasms/spasticity (even though they're hellaciously painful)
I can deal with cog fog
I can deal with tremors
The vertigo is just tooooooo much!
And that would be the symptom to be removed from my list =]
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Old 01-03-2011, 09:29 AM #34
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I would absolutely love to be rid of the crushing fatigue . It effects every other symptom so I imagine if I could be rid of that I would feel much better in other ways too.
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Old 01-10-2011, 10:40 AM #35
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Fatigue, fatigue, fatigue!
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Old 01-10-2011, 01:48 PM #36
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Cognotive ********.
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Old 01-11-2011, 09:07 AM #37
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Only one?? That's like saying you can only have one piece of chocolate even though I just gave you the whole box!

Let's seeeeeeeeeeee........ Lots of things I would like to get rid of. I think for the last year or so the hardest one has not been a physical problem. I think the depression/anxiety/insomnia/fatigue. yes, it counts as one!! I swear they are all related. if we could take one part of that it would probably take them all out together... like a tumor.

The rest of it I am learning to live with. I don't like it. I would like to give it all back.
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Old 01-11-2011, 12:16 PM #38
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If I could remove one symptom, hands down, it would be the hug. I would take away all the electrical zapping, ripping, burning, and associated intercostal muscle spasms. (Guess you can tell what I have been dealing with lately. )
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Old 01-17-2011, 04:40 PM #39
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Default Only one symptom is not enough.

I would have to get rid of my main 2 symptoms. The balance/gait issues and the fatigue. I could live with the insomnia and the occassional drop foot. I would be able to resume my planned life then. As for the cog fog, I would use note cards. I think once I got rid of fatigue, most others would dissipate.
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Old 01-17-2011, 11:54 PM #40
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The Fatigue or wait the spasms definetely the spasms...hmmm Wait the numbness yeah the numbness how about Just remove the whole MS
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