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Old 12-30-2010, 10:40 PM #1
Mariel Mariel is offline
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Default I take magnesium for butt-kicking spasm

Erin I take 900-1000 magnesium a day (in divided doses) and it stops my butt-kicking spasms as well as Baclofen. A neuro put me on it a generation ago. It still works. I do tend to have spasm.

Lyrica was impossible for me, made me feel like I could not breathe well.

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Originally Posted by Erin524 View Post
I take baclofen, 3 of them before bed, because it makes me sleepy. I have insomnia problems, at least the baclofen seems to help that.

I quit taking the gabapentin last fall. It was making my feet and ankles swell with edema. Replaced that with Lyrica, quit the Lyrica after about 10 days partially because it made me so stoned, I couldnt do anything. All I wanted to do was sleep. I didnt realize that it was what was causing me to fall asleep standing up.

Other reason that I quit Lyrica, it's apparently the same class as gabapentin and it was not only causing my feet and ankles to swell, but it was making my hands swell and other parts of my body. I had such bad edema that I went to my regular doctor and asked to have my heart checked because the edema was so bad that I was coughing all the time and feeling really weak. (my dad, a nurse, was worried that I was having symptoms of congestive heart failure) I did have some problem with my heart...cant remember what it was called....regurgitation something or another.

The edema in my hands was making my hands more numb. Once I got rid of all that extra fluid some of the numbness that I'd been blaming on the MS got a lot better.

So, I guess I cant take medications like gabapentin and lyrica.

Love the baclofen tho. I really dont like being woken up by my legs trying to kick me in the butt with my heels. Spasticity sucks. Sometimes I take a little valium (another muscle relaxer similar to baclofen) if the spasticity is really annoying.
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Old 12-30-2010, 11:54 PM #2
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I had the same problem with the Lyrica, the 10 days I was on it, I think about the 3rd or 4th day I started to feel like I couldnt breathe, especially when laying down...also for some reason it made the spasticity really bad in my ribs and stomach.

I swear, Lyrica was a poison. Nasty nasty stuff....
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Old 01-01-2011, 05:54 PM #3
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Speaking of "nasty stuff", Erin's words for Lyrica, I am in my second week ramping up on Intron-A. I guess many MS people take Intron-B. I have no idea what the difference is.
This stuff is supposed to cut back on the platelets I make too many of, with my disease
Polycythemia Vera. I HAVE to take this or something worse. No choice. I have been a person who for all the time I've "had" MS has tried to avoid drugs as much as possible. But now no choice. Side effects are not so good but I"m told they will get less.

Erin, try the magnesium, everyone try magnesium. Even if you have to take drugs too.
Helps spasm!
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Old 01-02-2011, 04:56 AM #4
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I'm going to ask my regular doctor about it. I'm going to call him about getting some physical therapy after that last flare that had me drunk walking. Probably ask about the magnesium at the same time.

Calling my neuro this week to see if he wants to see me earlier than March, since I just had that flare and the handy-dandy prednisone taper. May ask him about the magnesium. See what he says about it. (probably will just up my dose of the baclofen tho)
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Old 01-02-2011, 10:11 AM #5
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http://www.overcomingmultiplescleros...eople+with+MS/


There are new doubts about whether its the right thing to prescribe Neurontin, and other such drugs for MS pain.
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