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Old 01-13-2011, 11:14 AM #6
Victor H Victor H is offline
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Join Date: Jan 2008
Posts: 1,090
15 yr Member
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by SallyC View Post
Is everyone happy with their DMDs?

We've had a bunch of new meds come on the market, since we started this merry-go-round and I wondering how you all are doing on your med of choice?

I have not tried any of the new ones, because, I don't think they can beat what LDN is doing for me and I don't like the side effects of them.

Some of you have gone on the new GY, TY, Vein treatment, Cytoxin, hormones and much more. Please tell us if and how they are helping you....and/or, are they hurting you?

I think the scientists should rethink MS and go back to the drawing board. I'm sick and tired of big pharma and the FDA, pushing all these drugs on us, that MAY help us, IF they don't kill us first. There must be something out there that could stop this disease, without hurting us more?

We are used and abused by some of these, so called helpful, drugs, while big pharma and some of our Docs fill their pockets.
Sally,

I used Avonex for over 7 years until it stopped working.

Switched to Tysabri until the cost overwhelmed me (even with insurance). The co-pays, lab costs and infusion center costs were more than what some houses would cost. (If only I could infuse myself, then I may still be using it as the drug manufacturer was very accomodating with the price.)

For several years now I have been off of all DMD's, though I tried Rebif once and got sick as a dog.

I must admit, not injecting myself or having to deal with infusions has been very nice.

...Hoping for more data on the angioplasty procedure...

-Vic
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Kitty (01-13-2011), SallyC (01-13-2011)
 


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