[SallyC]

Is everyone happy with their DMDs?

We've had a bunch of new meds come on the market, since we started this merry-go-round and I wondering how you all are doing on your med of choice?

I have not tried any of the new ones, because, I don't think they can beat what LDN is doing for me and I don't like the side effects of them.

Some of you have gone on the new GY, TY, Vein treatment, Cytoxin, hormones and much more. Please tell us if and how they are helping you....and/or, are they hurting you?

I think the scientists should rethink MS and go back to the drawing board. I'm sick and tired of big pharma and the FDA, pushing all these drugs on us, that MAY help us, IF they don't kill us first. There must be something out there that could stop this disease, without hurting us more?

We are used and abused by some of these, so called helpful, drugs, while big pharma and some of our Docs fill their pockets.

[Kitty]

I'm happy with LDN. I was miserable on the DMD's. For those who can tolerate them and seem to be getting some benefit from them they're great. For the rest of us it's a case of the treatment being worse than the disease. It was for me.

[Dejibo]

I am happy being bareback. B and C were miserable for me. I was just suffering. If the big pharma could introduce me to a substance that helps and isnt so full of side effects that I feel like I am going to die, then I may try one. till then...stop helping me!

[Jules A]

I'm happy with Copaxone for now. I'd consider a switch if something better comes along that has a track record or if I start declining more rapidly.

[wkikta]

I am very happy with Avonex, don't see anything on the horizon that may be better, not even the distant horizon. This is because everything new they are considering has significantly greater risk of serious complications. The injections seem to be very safe.

[ewizabeth]

I'm extremely happy with Copaxone. It's working great for me! I feel very fortunate!!

[Debbie D]

I don't mind the Copaxone..the problem is remembering to inject...the cog fog takes over more than ever...

[kicker]

Rebif (3 + years) Made me fell terrible and never helped
Novantone made me vomit.
AP-4 (fampridine?) (bird poison) made my throat blreed a little and did nothing positive for me)

I'm PP, Nothing helps but chocolate (well, at least it tastes good)

[NurseNancy]

i'm fine on my copaxone. i'm stable, and walking with aids.
it's either the MS (mild?) or the C itself. who knows.

sally, could you tell me again what LDN is? i keep forgetting.
thanks.

[SallyC]

Originally Posted by NurseNancy

sally, could you tell me again what LDN is? i keep forgetting.
thanks.

The med is Naltrexone and LDN is Low Dose Naltrexone.

Naltrexone, at the higher doses 50 to 300mg is used as a narcotic/alcohol antagonist. In other words, it helps people get off of drugs/alcohol, by blocking endorphines

Dr Bernard Bahari, A New York Doc/Scientist, while searching for something to help Aids patients, discovered that Naltrexone, in small doses (1.75 to 5mg) not only helped some with Aids but also stopped/slowed MS progression in it's tracks.

By taking LDN sometime between 10pm and 1AM, it temporarily blocks endorphines, causing the endorphins to increase production during the wee morning hours.

Go to LDN Homepage for more info.