7 years is amazing. Congrats! Think of all that good quality life you got from Tysabri!

#42 today. Every 8 weeks like clock work.

Thanks Natalie and I do think about the QOL Ty has afforded me and am sooo grateful !!!

Congrats on #42 glad you are doing well!!

Linda

Thanks Linda! It's hard to believe I've been on this drug for 5+ years. I think I'm more prone to various sorts of infections because of Tysabri but it's totally worth it to me! (as I start a round of Augmentin)

#46 today. I have been going to this new infusion center for 8 months now and am SO happy I moved there! Not only is it closer to where I am living now, it isn't a hospital setting so it's more comfortable and the cost is much lower (by 50% or more) plus, I LOVE the nurses! Thank you to Talmatae and Jess, you are the best!!

Congrats to all who have been on Ty for so long and are doing well

I'll have infusion #74 next week. I missed several infusions due to repeated episodes of shingles But, I started Ty on 06-06-07 and love it!!!!!!!!!!!!!

The only problems I've experienced have been during and immediately after an infusion: headache, stomach ache, achy all over. The side effects usually only last 1 or 2 days. Other than those I do seem to be more prone to different types of infections and I itch a lot. But, the infections have not prevented me from having my Ty fix

The nurses at my infusion center have been dropping like flies....4 nurses in 6 months. The newest one has a difficult time hitting a vein She decided to use a pediatric needle on me last time and that worked Now, I'm hoping she doesn't forget to request more pediatric needles...LOL

I had my latest JCV test a week ago so I'm waiting for the results and the index number. So far I've been negative. I've decided that even if my results are positive I'm staying on Ty. If an oral med can cause PML I may as well stay on something I know and like. I'm not very good at remembering to take my oral med for vertigo until it's too late and I've been on that one for 20 years. I take it at least twice a day but, the RX is for 4 times a day. It's just so much easier to remember to take it first thing in the morning and at bedtime.

I'm sorry I've been gone for so long!!!!!!!!!!!!!!!!!!!!!!!!! Too many computer problems have interfered with my computer time. I know I need a new computer but, I don't want to learn a new operating system. Feel free to call me lazy.

hugs,
Shayna

Natalie and Shayna, sorry about the infections I think it is my vitamin regimen that keeps me healthy..

DizzyLizzy and Shayna, glad you both are on a good Tysabri journey

to all
Linda

. I have tested + for JC virus and have opted to stay on Tysabri. I can feel a difference if I delay the infusion for even a week. I was diagnosed over 25 years ago; my sister has ms too and she went off due to JC + and was too scared to stay on it. Am I being naive?

I have always felt that my odds of a better life on Tysabri needed to be my priority. pml is rare but, for the people that got it they don't care about the odds ..

How long have you been on Ty ? Were you ever on any immunosuppressants ?
Find out your #s of being jcv+, they know this now.

How is your sister after stopping Ty?

Good luck and my best wishes
Linda
whoops.. I now see you've been on it 5 yrs.

Hi there Courage

I understand your concerns. I am JC+ and have been on Ty for four years plus. I found out my JC status more than a year ago, and opted to stay on the drug because it has worked so well for me.

Now though, I am starting to get a bit nervous, and my husband is getting really concerned. How long can you play with fire? I don't know, it's the old risk/reward thing - I don't like the sound of the new meds either though - they haven't been around long enough to have an established safety record yet.

My Neuro doesn't seem to concerned about it and I think all of his JC+ Tysabri patients are still using the drug. Part of me wishes for a crystal ball, or that I could be visited by the 'ghost of MS future' to see what is in store for me if I follow my current path - then again, I guess I am glad I don't know.

Good luck in your choices