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Tysabri Check In, Support and Information Part Three

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Old 10-11-2017, 01:47 PM #1
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Kitty Kitty is offline
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Kitty Kitty is offline
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Join Date: Jan 2008
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Originally Posted by Natalie8 View Post
I haven't been checking in regularly - I can't believe I joined this forum 10 years ago! I wanted to update the forum in case people still visit. I always loved everyone in here.

I was at the nine year mark to the month for Tysabri when I was diagnosed with cancer. I had surgery and started chemotherapy. But my neurologist said that I needed to go off of the Tysabri. My sense is that I will not be able to go back on the drug because of all the chemotherapy medications which obviously suppress your immune system. I am still JC virus negative. I have no idea what I will go back on when the chemotherapy is over. It was emotionally crushing because Tysabri has been my lifeline for so long with zero relapses.

Anyhow I guess it's good news there are more new drugs out there these days. Anyhow it was a good 9 year run on Tysabri. I'm going to miss that drug.
Natalie

I am so very sorry to hear of your cancer dx. I hope the chemo does it's job and you can find something for MS that's as good as the Ty was for you.

Please take care of yourself.

Love,

Kitty
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Natalie8 (10-24-2017)
Old 10-13-2017, 07:02 PM #2
Grammie 2 3 Grammie 2 3 is offline
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Riverwild,
I am so sorry
I wish you my very best!
Linda
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Natalie8 (10-24-2017), Riverwild (11-15-2020)
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