YAY!! That's great news shayna !! I am still waiting for results and it's been 7 weeks and yes, I've called a few times

Fri I will get my 52 infusion. I waited 6 weeks this time, seems to be o k...
I have fought hard to stay on Ty when 2 neuros wanted to "make" me stop. My life has been better, progression has halted. I am very thankful for this med

RW, thanks for starting part 3

Linda

Shayna, that's awesome!!! I am so happy for you!!

Congrats Shayna! Finally received my Stratify 2 paperwork last week. Hope to get tested soon (and get results relatively quickly) as I'm now over 4 years on Tysabri.

Thanks Komokazi I hope you receive your test soon. Is there somewhere close to home that you will be able to have the test done????? I had to travel to Fresno, California to have mine done...but it was worth it!!!!!!!!!!

It's amazing to realize that some people have been on Ty for 4 or 5 years. You're an inspiration to all of us

hugs,
Shayna

1st infusion in the bag, no problems to report

Shayna, glad to hear that you finally received your results and that you tested negative!

Linda, I cannot imagine what is taking so long! I had my results back in less than 4 weeks! Let us know when you get your results!

Chris, I can't believe that you still haven't been tested! It blows my mind that some people have to go through so much to get this test! I would think it would be in the pharmas' best interest to get the long term users tested ASAP.

Clark, so happy to hear that you had your first infusion and that the process went smoothly!

I found out yesterday that I was positive as I said, I will not stop Tysabri. It would have given me peace of mind to be negative but I still feel the blessings of Tysabri for me out weigh the odds of pml... my neuro agrees.
Yesterday I had #52

Thanks Natalie. It was such a relief to finally receive the results and learn that they were negative. Now I can just continue with my wonderful Ty and not receive pressure from family members to take a break. I'm really looking forward to #41

hugs,
Shayna

Grammie, I hope you receive your results soon and they are negative!!!!!! I hope we all test negative!!!!!!

I've tried waiting 6 weeks between infusions. I found it hard not to have them every 4 weeks Good luck tomorrow.

hugs,
Shayna

hi all - I just got my 6th tysabri infusion; it's my first one since I found out I tested positive for the JC virus.

I was diagnosed 3 years ago and had 2 relatively minor flares with just sensory symptoms but had a pretty major post-partum flare for most of 2010 that peaked with swallowing problems and other scary stuff in the summer.

As a longtime HIV/AIDS activist, I know people who have died of PML (it was still relatively rare but more common in the days before effective anti-HIV drugs, when people became very very immune suppressed). I'm staying on the drug for now, but will be looking for alternatives at the 1 year mark or so.

I still have (maybe permanent) peripheral neuropathy in my feet and legs from the flare, and get my first MRIs since starting tysabri in a few weeks.

I'm wondering if anyone has ever seen statistics that look at women who had their most major or only flare as a post-partum one, and how many of them continue to experience major flares and/or progress to SPMS, and how many go on to not have flares if they don't have other children??

JD