I had my 18th Ty infusion last week, and things are going pretty good.

I'm so glad I read the last of your posts, because no one mentioned testing for PML to me. My neuro only mentioned a six month break after two years, but I'm going to refuse. I don't want to backslide. I would rather take my chances.

The only good news I got last week... Ty is keeping the lesions at the same count. And My JC Virus testing was neg!
There was an issue with my last infusion (surprisingly not a blown vein this time.) but the medication was sent up a tube and not walked up from pharmacy.... 4 hours later they finally made me a new batch..... it was a royal pain. Took all day. That was Monday. Now here we are saturday, and I am still fighting the sinus infection. Getting better though.

The good news is GOOD NEWS
The medication mix-up doesn't sound like fun-extra four hours
Get well soon
Linda

I am new to Tysabri, and should be starting my infusions real soon. My question is....How do I know if I am a part of the stratify II study? Do you sign up or are you asked to join?

If you received a JC Virus antibody test, you are in strafiy II study as the test is only available in the study.

I just heard from the Tysabri assistance program, and I qualified for a $10.00 co-pay for the Tysabri. But they told me there is a second fee for the infusion site that Biogen does not/can not help with. According to my insurance company that is an additional $40.00 co-pay.

I should begin my infusions real soon now.

Just curious....what do you all pay for your infusions? I am sure I am getting a good deal, however, I am not sure where I will get an extra $50.00 a month from....yes, it is really that tight financially in our home. Still have three kids at home too.

The cost of my medication went up a year ago. Now I pay $125 for the medication plus a $35 co-pay for a doctor's visit to get the infusion. At $160 an infusion I still consider that a steal compared to some other stories I have heard about costs. And I have a major insurance company PPO plan with a company that has thousands of employees.

I know you asked about this a while ago, but I just arrived at the boards and thought this might help: You may be able to get financial assistance for the infusion costs via the hospital or infusion center. My insurance didn't cover my Tysabri OR infusion (even after multiple horrible appeals) but the hospital approved full coverage for me after submitting a simple request form. Maybe that will work for you as well!

I hope all went well in your first infusion!!!!