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03-30-2011, 08:45 AM
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#12 | ||||
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Magnate
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I hear you on the sticks! I give the nurses two shots at it and then a new one comes and does the stick. Are your issues only with them hitting the vein or are you having other problems with Tysabri? I believe you can have a port inserted if needed. That way they only have one target!  Have you had the test for the JC antibody yet? It's said that if you are negative to exposure to the JC virus, that you can stay on Tysabri indefinitely if you are doing well. That is what I am doing for now since I haven't had any problems or relapses since I started, and I tested negative for exposure to JC. I ask about the test because I am not sure if they are doing it in Germany, they are doing it here in the USA but I can't remember whether it's happening in other countries yet. I am at 50 infusions now, and have only missed one. I had an emergency appendectomy and didn't want to throw Tysabri on top of the mix of drugs I was on since the infusion was due two days after the operation. I resumed infusions the next month with no problems. Quote:
My doc doesn't check CD4/CD8 counts. It's his opinion that general health and wellbeing, along with relapse rate and progression of disability are better predictors of how patients are doing, since we already know that CD4/CD8 counts are affected by Tysabri. He did check one time at my request and I was within normal range when tested. Let us know how you are doing and what you decide to do. We're here and we are listening if you need to talk. 
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | clarkstar (05-27-2011), Grammie 2 3 (03-31-2011), Natalie8 (03-31-2011), SallyC (03-30-2011), shayna (04-04-2011) |
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