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Old 04-05-2011, 07:59 PM #13
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default Kara

Hi Kara, sorry for your troubles
I will have #54 Friday. Some nurses consider me a very hard stick others get me the first time. I have learned to drink fluids, keep my arms and hands (sorry they won't use your hands ) warm and tell them my veins are deep and rolling (I learned this a couple years ago from a nurse).

As for how long can we safely stay on Ty. I hope I will be on it until I no longer need to be on it.. a neuro at the RMmsC (Colorado) said that when you reach a certain age (65) for some ms stops or that something better has come along. I monitor my status-pretty vigilante... I pay attention to how I am keeping in mind signs of pml.

Tysabri has been/is a blessing for me !!!!!

Best wishes
Linda
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