Anyone else have their facesexplode in teenager like acne after the infusion? I can't tell if it is because I am back on the Ty or if it is due to the lack of pain meds in my system and my body adjusting to pulling the plug on all of my other meds. What I do know is I have painful bumps all over my face and it is annoying as heck.

i have that on the top of my foot, it sucks

augh i'm told i probably have a uti. going to urgent care, wish me luck!

Good luck. Started my antibiotics Tuesday. UTI and sinus infection hit me every month like clockwork after my infusion. The weird part is, they always hit the week after the infusion so even if they gave me antibiotics with the IV, they would wear off before the infection hits. But, it beats the alternative I guess.

I was reading the first of these Ty posts and it talked about people taking benadryl or tylenol before doing the infusion. That might be an obvious but why do you do that?

I drive all the way to UCSF tomorrow to have a neuro appointment on Monday morning. I am worried about that drug. I dont want to die yet-I've gotten used to living so there's that. MS sux tho and I'm tired of it not responding to two other meds so I am ready to consider it. Any thoughts?

Hey DOcTorT, people take Benadryl in case they may have an allergic reaction to Tysabri. I got my 60th infusion last Fri. I was sitting next to a gal who was scratching her arms, about 10 minutes after I noticed the nurse came with a shot of Benadryl for her.

My thoughts on your last post. Tysabri has been my friend, restored my QOL.
In the first 12 months of Ty there has been 1 case of pml, up to 24 months a few cases. The odds of pml between 2-3 yrs is the highest but, in my opinion still rare. I know what ms can do to me so, I chose to stay on Tysabri.

Good luck and best wishes,
Linda

Thank you Linda. I was positive for the antibody so we will be starting Gilenilya instead. Now to do the prerecs from the other spealists and see if I change to that med

Hi All: I have been on Tysabri since Mar. 2011. Got result of postive for the JC virus in May and Neuro started me on Tysabri every other month. Medical carrier was Aetna at that time, now I'm on Medicae effective Sept. 1. Medicare is refusing to pay for infustions every other month, they WILL cover them every month. I understand that every other month is not following prescribing info from Biogen Idec, but, it saves them money if I go only every other month. My neuro now wants me to go back to every month and I'm not sure I want to due that based on the JC virus and numbers I see listed on the internet for PML and JC virus. I would love to hear from positive JC and on Tysabri patients and also from people with MS on medicare and how they have had the drug covered. Thanks all, Pat

Hi Pat and welcome to the Tysabri thread!