Hi Neuryoman,

My liver enzyme tests have all been normal

Good luck!!!!!!!!!!!!!

hugs,
Shayna

welp, my insurance (medicaid) was cancelled as of Jan 1 so no more tysabri for me, for probably 6 months, which is the wait time until i can get insurance again. cigna told me MS is an automatic denial

Have you spoken to the patient assistance program? They seem to be working with people to find solutions.

In my case, they offered to give me the vial for a co-pay of $10.00 but it still didn't help me, since it's the co-insurance and deductible I have a problem with. Their giving me the drug only freed my insurance co. from having to pay for the drug, but I am still stuck with the huge bill for the first infusion every year, so I told them to save it for someone who truly will benefit from their assistance.

I am evidently not eligible for a reduced rate from the infusion center despite having been turned down by the state medicaid program, so I went on a payment plan with the hospital where I get my infusion. I'll be paying 10% of my monthly income from now on unless something changes.

It hurts, but it's worth it for me to make sure I stay where I am rather than going down the tube!

Please call your caseworker and let them know what is happening with your insurance. They can help.

i did what youu advised, thanks. i qualified to get the drug for free and $100 towars the infusion coosts. now i have to see what the total infusion does cost to see if i can afford it. ccant belive the medicaaid program just leavs us high and dry like that

I got the first one and only recection I seemed to get was just tired the first night. I am on the 10 dollar payment plan with the Touch program. I am still working and want to keep working in to next year, god willing I can. I will be 65 this year but I am not going for medicare until I no longer work. I am going to file for my social sec, at the end of the year. If I wait tell I am 66 I will only get 30 dollars more, so I want to be ahead of the game.I joined the community center swim class and will be going twice a week. I am trying to fit more activity in my life to hopefully gain more engery. I hope this med can help me to be able to walk my dogs more. My spascity in my legs is what get to me and my hips. Does anyone have the hip problems when walking?And I hope now that I am on a program of meds that it is not to far in to MS to help. I asked my nero on Thurs. how many lessions I had so he looked at my latest MRI as of Nov. 2011 and he counted 15 lessions, with some others that were fading out. Not sure does that mean I have had lots of relapes? Sure would like some answers , the neros dont seem to say to much unless you push for answers. Kathy

Glad your 1st infusion went well I hope Tysabri helps with your symptoms even tho this is not one of the claims Ty makes-good luck!! It has helped with mine and my MRIs. I am 63, been on Ty a few months over 5 years
Best wishes
Linda

Hi Linda does it seem the ty has helped your fatigue at all? Seems for the last month I have had a lot of fatigue. it seems it is a dailey thing. At work I try in the afternoon not to walk as much. Some days when I come home I just feel as if I am dragging. I work nine hour days, I notice just before I started ty I was feeling run down. Kathy

Clarkstar,
Glad to hear it worked out for you!
Check with your infusion center, many of them have programs for people with no insurance. They may even just accept the $$ that the patient assistance program is helping you with. You don't know until you ask!

I have been on Ty for three-and-a-half years, and it has done wonders for me. I have not had the JC virus test.

So....that is just background....but...my question is, for the last month or so, I think I have been having some new spasticity issues with my left leg when I am walking some distance or when I have been sitting for a while, my calf has been stiff, tight and sore and after a while it has travelled up my leg to the back of my thigh and into my butt. I have also been more tired than usual.

I haven't reported this to my neuro, because I figured that I have had MS for 10 years, and this is probably just natural progression and it is not worth bothering him with something small like this.

Do you think I have gone the right way? Or should I have been in touch straight away. Do symptoms like this raise the flag of concern? Or does it just sound like trivial stuff that I should just accept as "my new normal"? I don't want to cry wolf.

Thanks for you ideas

Lyn

See your Neuro and have that test, Lynn. Any change for the worse while on TY is a red flag.