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Old 11-05-2012, 03:00 AM #19
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Grammie 2 3 View Post
I had my 74th infusion yesterday
Linda
Yay!! I had # 71 on Nov. 1st! Still no problems or concerns.
Saw my neuro afterwards, he says the new schedule for the Stratify test is every 6 months now, not one year as we have been doing. I didn't have time for the blood draw that day so I will have the draw Nov.29th before my next infusion and get results a few weeks later.

He said that there was a patient who previously tested negative and came down with PML, and when checked for the antibodies, the patient tested positive. They went back and re-tested the sample from the previous draw and it still showed negative. Just a reminder to us all to be vigilant, that they still don't know how people are exposed to the JC virus. I was warned yet again to report ANY signs/symptoms that last more than 24 hours. any weakness/numbness/vision problems, etc.

I also turned down the MRI he wanted to schedule. I can't afford the 10% co-pay that my rat#$% insurance wants, even though I am through my deductible and co-insurance in January every year. Since I haven't had any major problems, I don't feel it's necessary and I haven't had any new or enhancing lesions since I started Tysabri. I'll do one if I have problems, but not for a looksee in search of things that can't be fixed anyway!

Hope everyone's doing well! We survived the storm with only minor wind damage, didn't even lose power. My prayers go out to those who are still in the dark and out of their homes.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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"Thanks for this!" says:
Grammie 2 3 (11-05-2012), Natalie8 (11-13-2012), SallyC (11-05-2012)
 

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