Tysabri Check In, Support and Information Part Three

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05-07-2013, 09:11 PM

#11

DizzyLizzy DizzyLizzy is offline

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Join Date: Dec 2008

Location: Minnesota

Posts: 222

DizzyLizzy DizzyLizzy is offline

Member

Join Date: Dec 2008

Location: Minnesota

Posts: 222

Well I am officially having my first 'relapse' since starting on Tysabri on Jan 15, 2010. Had an MRI last Wed and got a phone call on Friday afternoon telling me that I have 4 new, active lesions . I see her for a consult tomorrow and also have an infusion scheduled 30 minutes after that (#41)

I have no idea what to expect tomorrow. I guess I have just become so accustomed to being stable on Ty, that I honestly have not considered being off of it.

I am having little twinges of panic tonight...

__________________

Amy

DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE

.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.

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"Thanks for this!" says:

Grammie 2 3 (05-10-2013), Natalie8 (05-09-2013), Riverwild (05-10-2013), SallyC (05-07-2013)

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