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Old 06-01-2013, 08:35 PM #1
Grammie 2 3 Grammie 2 3 is offline
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Originally Posted by Riverwild View Post
#79 done the 16th. Starting my seventh year on Tysabri....
JC AB test done the same day, waiting on results, expecting another neg. becaue I deserve it!

Life is good!
You do deserve it!!
Happy 7th year I'm now 8 months into mine
Linda
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Old 06-03-2013, 12:38 AM #2
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Originally Posted by Grammie 2 3 View Post
You do deserve it!!
Happy 7th year I'm now 8 months into mine
Linda
I will be at the 5 year mark in July. Does that mean I'm entering my sixth year? Not sure how it works.
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Old 06-05-2013, 10:00 PM #3
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I will be at the 5 year mark in July. Does that mean I'm entering my sixth year? Not sure how it works.
I started 10/06-so 9/07 I completed 1 yr and 10/07 I started my 2nd year. So, 9/12 I completed 6 years and 10/12 I started year 7.
Natalie, I hope I made sense
Linda
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Old 06-06-2013, 02:13 AM #4
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I started 10/06-so 9/07 I completed 1 yr and 10/07 I started my 2nd year. So, 9/12 I completed 6 years and 10/12 I started year 7.
Natalie, I hope I made sense
Linda
Yes Linda, that makes sense! I started in 07/08. So this Aug will be the start of my 6th year. It's so surreal, the pre JCV antibody test world when no really knew what was going on. I remember a month after I started there were the first 2 PML cases post clinical trial. I was so freaked out and wondered if this was the right choice.

But it totally is the right choice!

Can I just reiterate once again how much I LOVE this drug? I've had no relapses, no progression (knock on wood, knock on wood, knock on wood!--I always have to say that). It has allowed me to keep working with little effect on my job because of minimal side effects.
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Old 06-12-2013, 10:30 AM #5
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Yesterday was my 82nd infusion slight headache but, I was good to go.
The eye therapy I had (and do) for balance has kept me from falling-one fall in 13months ! YEA!!
Hope all are well
Linda
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Old 06-13-2013, 12:35 AM #6
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Yesterday was my 82nd infusion slight headache but, I was good to go.
The eye therapy I had (and do) for balance has kept me from falling-one fall in 13months ! YEA!!
Hope all are well
Linda
Linda, what exactly is the eye therapy you do? Can you describe? Congrats on 82. Wow! At some point you and Riverwild will hit triple digits!
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Old 06-15-2013, 12:53 PM #7
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Hey Natalie, I went to a special PT, a PH'd Jeff Hebert (affiliated with the RMmsC) created it and it's pretty darn simple I stand with legs as close together as o k for me. My thumb (s) (I trade off hands) do side ways figure 8s that my eyes follow without turning my head-I do this for approx 3 min (now-less time in the beginning). Then I stand with my eyes closed for 30-60 secs. Then I turn my head to far left, far right, far left, far right and hold in the middle for a 2 seconds - doing this 9-10 times (but, starting out maybe 5). I do this, hopefully , 3 times a week. I stand in the kitchen, a corner of my cupboards, in case I lose my balance I have what to lean against.

Linda
ps Thanks for the Congrats
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