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Old 01-19-2011, 11:48 AM #1
jacksonsmommy jacksonsmommy is offline
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Are you taking vitamin D supplementation? Some of the literature indicates that keeping blood vitamin D levels high is just as effective (or more) as the DMDs on the market. My MS clinic recommends MSers take 6,000 - 8,000 IU of vitamin D per day.

I used to take copaxone. It personally did nothing for me. At least you don't get the flu like symptoms and you don't have to do the blood monitoring. Make sure you religiously rotate your injection sites or you'll end up with bad lipotrophy.
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Old 01-19-2011, 10:18 PM #2
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Quote:
Originally Posted by jacksonsmommy View Post
Are you taking vitamin D supplementation? Some of the literature indicates that keeping blood vitamin D levels high is just as effective (or more) as the DMDs on the market. My MS clinic recommends MSers take 6,000 - 8,000 IU of vitamin D per day.
At 1000 IU daily my GP mentioned that I take a lot less D than most with MS, but my neuro saw my recent blood workup, including my D level (after 12 hour fast) and said 1000 IU was good for me and to go no higher than.

Again, we're all so very different. I'm a strong believer in the D (D3 more specifically) as well.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 01-20-2011, 05:41 PM #3
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hi reba and welcome.
sorry for the reason you're here. you'll get lots of support and advice.

i've been on copaxone for 8 yrs and luckily have tolerated it well.
i'm very stable and my MS has not progressed; knock wood.

i know it's everyday but it does become routine after a while.
my best tip would be to find the best depth for you to inject the shot.
i also started to use my autoject less and do manual shots. they actually didn't hurt as much and i had less reactions.

in the beginning you will probaby get some reddness and itching. i found ice to be very helpful but some use heat too.

the nurse that comes to your home is very helpful.

good luck and check back with us.
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