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Sleeping With MS... How do you do it?

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Old 01-23-2011, 02:52 PM #21
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Originally Posted by jeep4wd View Post
I really sympathize with all next to pain this really is draining..I really feel so much better if I don't sleep.I have the energy to tackle some jobs around the house then I'm tired and enjoy some sleep.Then I am so weak and have no energy to do much.Does anyone here feel better with little or no sleep..My family really thinks this is strange I do too..
Yes, sometimes, I do my best work late at night!!
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Old 01-27-2011, 08:07 AM #22
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What do you do at night if you can't move your legs anymore?

My H has PPMS and has trouble moving his legs at night. He complains that this feet ( the heel part that touches the mattress) hurt. Should I be moving his legs around at night? Is he at risk for blood clots? He wears socka to bed and sometimes puts a pillow under his feet as well.

Not sure what else to do.
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Old 01-27-2011, 09:29 AM #23
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Wish i had some answers for you on that one. If it seems to hurt less with the pillow, I would say go with it. I don't know anything about blood clots, I do know after my mom had surgery, they had this machine that hooked to her legs and kind of massaged them every few minutes. I have no idea how much these machines cost. I assume they are not cheap.
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Old 01-30-2011, 08:18 PM #24
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I had tried Ambien and Lunesta. My problem is that my back muscles get WAY stiff if I lay still for long; it doesn't hurt exactly, but it keeps me from sleeping. Curse you, spasticity!

My doctor gave me a scrip for 50 mg Xanax and it's made all of the difference in the world for me. One Mother X and two Baclofen at bedtime and I am set.

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Old 01-30-2011, 10:32 PM #25
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I used to take Ambien but, then I retired and my meds cost way too much. Now I own stock in Nyquil company. Lots cheaper and I sleep just as well.
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Old 01-31-2011, 07:53 AM #26
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I take Hydro/Acetam (Vicodin) but have stopped night time pain, I think, with sheepskin on my wheelchair, small down lap blanket on my back against back of chair. We'll see tonight. Hydro/Acetam makes me poop less regularly. Want to try Bendryl tonight (will ask Neuro what he thinks) to help me fall asleep.
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Old 01-31-2011, 08:31 AM #27
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Quote:
Originally Posted by nancymarie View Post
What do you do at night if you can't move your legs anymore?

My H has PPMS and has trouble moving his legs at night. He complains that this feet ( the heel part that touches the mattress) hurt. Should I be moving his legs around at night? Is he at risk for blood clots? He wears socka to bed and sometimes puts a pillow under his feet as well.

Not sure what else to do.
They sell sheep skin booties that he can put on his feet so they stay wrapped up and less chance of that pressure being on his heels. Perhaps this would help him feel less pain, and therefore stay asleep? Is there a way to prop his feet on pillows so they are not dug into the mattress?
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Old 02-01-2011, 08:51 PM #28
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Nancymarie -- Sheepskin was what I was going to suggest. Also possibly memory foam, or a pillow under his knees so his heels aren't in that position. Have you talked with his doctor about that problem?
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Old 02-01-2011, 09:04 PM #29
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My new trick is getting up to use the restroom every hour on the hour. Takes me forever to get back to sleep.....and by the time I do I have to go again!
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Old 02-01-2011, 09:31 PM #30
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My new trick is getting up to use the restroom every hour on the hour. Takes me forever to get back to sleep.....and by the time I do I have to go again!
Me too...
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