Hi bob! no advice, just hugs!

Thanks for the info. The trigemonal neuralgia is what I looked into before and your description of just lightly touching the hairs causing the pain is spot on. However does the pain stop as soon as you stop touching? Mine does. Reading the description it sounds like it can happen without stimulus also. Mine only comes on when I touch the spot and instantly goes away when I stop touching. No other numbness or anything else in the face at all. Just pain when I touch.

Kinda scares me they said it was an symptom of MS they wanted to call my left side issue that but with no other lesions they could not.

I do not take any medications. My vertigo lasts only 8 hours and I do not think it is related to my lesion other then now after I have had it for some reason must inflame the healed nerve and cause some light numbness on the left side.

When the lesion happened and nerve commands were not getting through lasted 60 days.

It is not on the scalp that feels the pain, rather the pain is a sharp internal pain in the brain.

Welcome, Bob, nice to meet you. I have had nerve pain in my face, so I empathize with you. My pain was more constant and shooting, but excruciating (from shingles) I have no lasting pain from it, as some do..Thank God.

Feel better soon.

Hi Bob,

I had what I was told was Trigeminal Neuralgia. I would get pain in and around my ear, jaw, etc. and was sent to a dental specialist. Checked for TMJ, etc., no jaw/dental problems, therefore it was TN.

When I researched TN I found that my pain was different than what was described for either typical or atypical neuralgia, since my pain could often be constant lasting up to a week or more.

Despite all my docs (PCP, Neuro, Dentist) no one really pointed to any one cause. I have therefore come to my own conclusion: Not that it will make you feel better, but maybe demonstrate that whatever is going on with you is causing your Trigeminal Nerve pain.

In my case my MS has focused on my Trigeminal nerve, just as it might cause ON, or tremors, or swallowing problems, it causes pain all over my TN. (which is a nerve with many branches running through the face, eyes, ears, neck.) I now take lyrica and it is 90% better.

Good luck with the testing, hope you get relief from pain and numbness soon!