FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | ||
|
|||
Member
|
I have a warped view of what I think MS patients can and can not do. I would love to hear what a typical day is like for you all??
I have been dx since Jan 2010, I have not worked since 2007. I spend much of my day sitting on the couch. I do the laundry, and cook most of the meals. I do go out to the store, but I do not go 'shopping'. I really only can handle one hour out at a time. Thanks ![]() |
||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Wisest Elder Ever
|
Quote:
![]() I don't work anymore (not since 2007). Used to work 60-70 hour weeks. Since I no longer have a car (got rid of it for financial and health reasons) I usually stay home unless someone picks me up. But that takes a lot of planning on my part. ![]() I still cook and clean, do laundry, etc. But it's all done in little intervals......when I have the energy. Most of my time is spent either reading, watching TV or on the 'puter. ![]()
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
"Thanks for this!" says: | Blessings2You (02-27-2011), daisy.girl (02-27-2011), dmplaura (02-27-2011), Jodylee (03-02-2011), SallyC (02-27-2011) |
![]() |
#3 | |||
|
||||
In Remembrance
|
Me Three..
![]() ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
"Thanks for this!" says: | Blessings2You (02-27-2011), daisy.girl (02-27-2011), dmplaura (02-27-2011), Jodylee (03-02-2011), Kitty (02-27-2011) |
![]() |
#4 | |||
|
||||
Wisest Elder Ever
|
I consider us all "Ladies of Leisure".
![]()
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
|||
![]() |
![]() |
"Thanks for this!" says: | Blessings2You (02-27-2011), daisy.girl (02-27-2011), Debbie D (03-02-2011), dmplaura (02-27-2011), Jodylee (03-02-2011), SallyC (02-27-2011) |
![]() |
#5 | |||
|
||||
Elder
|
As far as what MSers can and cannot do, you might get as many different answers as the number of people who respond!
I know someone who has MS that hikes mountains, works full time, and actually has a life. (And yes, she really does have MS) I know someone else who has MS who is in a wheelchair, sleeps a great deal of the time, and gets exhausted folding a few towels. I fall somewhere in that huge "in between". Most of the time, my life looks pretty normal, as long as you're talking normal for a person 25-30 years older than I am. (I'm 60)
__________________
* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
|||
![]() |
![]() |
"Thanks for this!" says: | daisy.girl (02-27-2011), dmplaura (02-27-2011), Jodylee (03-02-2011), Kitty (02-27-2011), SallyC (02-27-2011) |
![]() |
#6 | |||
|
||||
Elder
|
each day can be the same or quite different. Many days I have the energy to clean, cook, chase animals, and go to meetings, and events and see friends and family. There are other days that I am quite tired and when I feel my gas tank running dry, I know its time to schedule some quiet things to do. TV, computer, reading, catch up on phone calls, and the like. Things that dont involve me being on my feet.
I have days that I can walk around the whole block and other days that I dont want to walk to the kitchen.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#7 | |||
|
||||
Magnate
|
DX'ed about 3 years ago now, neurologist suspects disease activity for at least 5 years at point of dx, so I figure a good 8 years roughly with the disease under my belt...
I work a full time job and I don't suffer from symptoms day to day, except for sensory like burning/tingling (mostly from the neck up). Medications for pain can control this for the most part, I do have break through pain though. I've not taken a day off work for 'MS' symptoms since returning to work at the end of 2008. Everyone's very very different... ![]()
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
|||
![]() |
![]() |
"Thanks for this!" says: | daisy.girl (02-27-2011), SallyC (02-27-2011) |
![]() |
#8 | |||
|
||||
Grand Magnate
|
I am still teaching full time at the college level. I am 54. They schedule most of my classes in the morning when I have the most energy. When I get home, I usually will lay down for a few hours or sit and read. Until recently I had a house cleaner so I just did laundry and occasionally cooked for myself. I eat out way too often. I need to find someone else to clean for me because I am having trouble handling it along with school. I plan on taking early retirement next year when I am 55. Most of my shopping these days, except for groceries, is done on line.
I typically do most of my grading on weekend mornings because I am too fried by the evening. Evenings are spent watching mindless tv. I am usually in bed by 9:30 since I have to get up at 6:30. I wore myself out this morning rotating the mattress on my bed and putting on clean mattress pad, sheets, and comforter. |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#9 | |||
|
||||
Magnate
|
What my day is with MS has varied through the years.
I was diagnosed when I was 24 years old, married 4 years at the time. I worked, played, socialized. We have moved several times through the years, yes, I am still married to the same man...2 months from 30 years. We had 2 children who are now 19 & 21. I was a taxi driver for them and their friends, a soccer mom, I took them to Karate, Birthday Parties, swimming, indoor fun zones. I participated in school parties and always attended parent/teacher conferences. I have a house to run and when we decide, like now, it's time to update I am the one who shops around and/or gets estimates. I still shop...I love shopping ![]() We have always had animals (dogs and 1 cat). I am the one who feeds, takes them to the vet and when the time comes take them and stay as they are put down. I am the one who handles the bills and banking. I try to exercise at leat 5 days a week. I also have days nothing gets done.
__________________
Dx RRMS 1984 |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#10 | ||
|
|||
Member
|
Quote:
|
||
![]() |
![]() |
"Thanks for this!" says: | SallyC (02-27-2011) |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
How would you describe your facial numbness?? | Multiple Sclerosis | |||
How do you describe your RSD to others? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Can someone describe the differences... | Diabetes / Insulin Resistance / Metabolic Syndrome | |||
a new way to describe what MS is to me | Multiple Sclerosis | |||
Describe how you went numb? | Multiple Sclerosis |