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Old 03-02-2011, 01:54 PM #1
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if the med isn't helping i'd make an appt to talk to your neuro.
i don't know how long you've been on it.

everyone makes their own individual decision whether to con't taking their med or not. deciding against it isn't a bad decision. you just have to weight the pros and cons.

if you have active or declining disease you might want to consider some type of med. imho. also, there are oral meds coming out.

maybe you could request that the copaxone nurse come to your home. she can evaluate how you're giving the shots and maybe give some suggestions to make it better.

i've been on C since '03 so understand the daily grind.
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Old 03-03-2011, 05:39 PM #2
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I've been on it for over two years. I guess I'm just burned out. I only had 2 new lesions the last MRI in June, and they were inactive and small. My symptoms dont seem to go away, except for bladder probs. They get worse when I am stressed, overheated, fatigued or sick. And of course the fatigue isn't constant- a week or so here or there.
but the leg issues, now arm issues, cog fog, new intestinal issues...these are seemingly permanent.
DH is an angel to inject me with the autoject. I am just tired of the whole business. MS is a very stupid, unpredictable disease. I am still in denial even after almost 2 1/2 years...I still wonder if it's MS or if it's just my imagination
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Old 03-03-2011, 09:35 PM #3
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debbie,

just a thought. i was having a lot of site reactions. i set up an appt and the nurse came out and evaluated that. i had been against manual injection for so long but i tried it and now i find it's better than the autoject. the sites are better too.

you might consider it.
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Old 03-04-2011, 08:55 PM #4
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Hi Debbie D,
You can't really know how you'd have been doing if you hadn't been taking Copaxone for the last two years. That's always the problem, isn't it?

I was on Copaxone for nearly 3 years but currently I'm off it. Maybe just taking a break--a lot depends on an MRI I'll be having in December.

I don't think that going off the shots because they remind you that you're not well is a good reason to stop Copaxone, though. Your MRI has probably told the story, and it's no fun to have to accept it.

If you're still RRMS, the chances are good that Copaxone might help slow the MS down. It might help you if you have a progressive form of MS too--they just haven't tested it on those types of MS.

I'm pretty old to be taking Copaxone--they don't know much about how it affects older people (I'm 70), either, or people who've had MS as long as I have (at least 30 years). I'm not eager to put up with some of the problems Copaxone created for me but if the MRI shows that my MS has worsened since I've been off it, I'll probably go back on it.

Maybe I'm just grasping at straws, but it's better than doing nothing. I don't enjoy looking at my shrinking brain on an MRI.
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Old 03-05-2011, 12:52 PM #5
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I was off of it for 3 months last year; I had to go off of it because I was being considered for a clinical study, and the body had to be cleared of it before I went on the study.
Wasn't able to go into the study after all; my thyroid numbers weren't stable enough. So I began injecting again. I don't get many site reactions any longer, except this stupid pain I was getting...it seems to be dissipating now.

Not sure I want to consider manual injection...if I have to I will, but it's just the mental strain of 1)even remembering to inject and 2)I just don't wanna!
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Old 03-05-2011, 12:57 PM #6
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Debbie, when I was on C and also on Beta I had the auto-injector. And I am needle phobic! I decided to try the manual injection and see how it went. I was kicking myself for not trying it sooner. No loud auto-inject noise, virtually no pain and no site reaction afterwards. I almost looked forward to the shot because I knew it wouldn't hurt and I was in control of it. That made a big difference.
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Old 03-05-2011, 01:22 PM #7
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I agree with Kitty. I found the autoject really difficult. The noise it makes startled me to the point where I'd jump, and then the shot hurt more.

With the manual shot you can control the speed of the injection. I did the shot really slowly.

I couldn't do my arms very well manually. After a year or so of trying, I switched to the autoject for my arms.
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Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24
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