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Old 03-07-2011, 12:53 PM #1
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(((((Debw)))))
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Old 03-07-2011, 09:59 PM #2
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First of all, this is not a club I wish you were a part of...
Second of all, I am glad you have some answers...
third...are they discussing a DMD with you yet?
What stage of MS do they think you are in?

Make sure you take copious notes about your sxs, dates of onset and dissipation...as well as ?? for the doc at your appointment.

And most important of all...know that you are NOT alone...we are there for you, with info, hugs, laughs and support.
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Old 03-08-2011, 12:25 AM #3
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DebW, Sorry to hear you are one of us now. But better to know what disease you are fighting. We all need to know what is wrong with us. We know something is very wrong and they can't find a label for it. It just takes time.

I hope you feel better with the new medication Gabapentin (Neurontin brand name). Go to PT, it helps. Take care.
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Old 03-08-2011, 09:35 AM #4
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Thanks for all the welcomes and well wishs, Was really beginning to think I would never know where I belonged.
Think he waiting for MS panel to come back, although he did mention inferons?
I am thinking this Gabapentin is kind of like Lyrica, which I was on for my fibro a few years ago. Sounds like you have to build it up til you get to a level that works for you. I did hated going off of the Lyrica, Even though I went off slowly, It really caused head pain!
You are all a Very Nice Group of People, I've been around since 2007, Reading and listening, trying to figure out what was going on. It's so nice to have someone to talk about what you are feeling with people who are feeling something similar.
Going to make Pt appt today. Later my friends!!
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