Howdy All,
Had my spinal tap on Feb 15th, went Thur for the results. Dr. was delayed for some reason, said he had to run over to hospital for something. Twenty min later he came in flustered and upset. They ran everything but the MS panel, which was sitting still at hospital, for the last two weeks. I prob looked a little pale as, it seems this always happens to me.
As he calmed down, he went over all the tests he had run, Sarcoid, some tumor cells test, mad cow disease, every test he could find to run, that mimics ms. They were all negative. So I said so no diagnosis then? He took me out in the hall to his computer and brought up my last MRI's they had done. He showed me the suspected MS lesions, the dawson finger one, the one, looked like it was around the middle of my brainsten, went all the way around the middle. then another one in the back. He even if the MS panel was negative, he had ruled everything else out, so it was MS.
Gave me a prescription for gabapentin, one for Physical Therapy for my balance, and dizziness, to see if they can help. I go back in six weeks.
The head of the lab department came over and got me and took me over for a blood draw, to go with the fluid, to run the MS Panel. I questioned the viability of it, since it was two weeks old, of course he said it would be fine!!
So I guess we will see, We are done testing? He comes down to my hospital in town once a month, so I will be seeing him down here, and don't have to go back up to his office. He said the CEO of the hospital, will be contacting me to apologize for their error.
So I'm kind of relieved, but could have done without all the stress!!