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Old 08-21-2013, 09:15 PM #6
batbird42 batbird42 is offline
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Join Date: Aug 2013
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10 yr Member
batbird42 batbird42 is offline
Newly Joined
 
Join Date: Aug 2013
Posts: 1
10 yr Member
Default I am test patient # 10 of FTY720

I've been on this medication for over 61/2 yrs. I have been on every dose study that Gilenya has done. When I was diagnosed in 2007, the whole left side of my body was paralyzed. In the course of 61/2 yrs, I have learned how to suppress this disease. I have chased it from the top of my spine to the tips of my toes.

I have learned what turns it on and how to turn off an attack in my body. Doctors cannot explain how I turn it off because they don't understand my findings. I cannot be a spokesperson for Gilenya because I discovered something the doctors cannot explain. I explain to the doctors that the attacks start in your mind and that it is caused by stress.

Suggestion: Document everything that happens to your body. Note what is going on in your mind prior to the onset of an attack. How much stress are you experiencing at the time of your MS attack. Note the tone of voice that people are using when speaking to you. Is it calm or harsh? Try to pinpoint the location of the where attack of numbness starts in the spine.

I would like to thank Novartis for allowing me to be a test patient. My goal is to be on this medication for the rest of my life, and share what I have learned with everyone. Please ask Novartis to allow me to share what I have learned about how to suppress the MS attacks with the world.
P.S. I won the battle against MS.
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"Thanks for this!" says:
ewizabeth (02-01-2015)
 

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