Thought I'd ask the experts! I am not dxd MS, have multiple dxs in other areas. My problem is when i get a migraine in the last year or so, it is often accompanied by very bad pain in the side of my head. It can sometimes start before the migraine, or stay as a residual pain after.

It is a distinct curl that descends from my temple down towards my eyesocket area, and burns/throbs/stabs. My migraines predominantly hit behind my eye and into my neck. I have read of TN before and this pain sort've rang a bell. I have had post migraine neuralgia in the past that has triggered eye flutters for up to three weeks, but not painful, just annoying.

Does this description sound like TN at all? Thanks.

For years now, I have a TN pain 4 or 5 timesa year for a few days at a time. The pain is a sudden, sharp stabbing in the corner of my eye. This is not a little stab. it's like someone suddenly stabbing you in the corner of your eye.

I'm lucky in that the stab lasts a second and usually does not come in multiples. It is usually hours before it happens again. After a day of stabs it just disappears for a long time. I am lucky it plays hide and seek.

The pain is intense and your TN sounds just awful.

Linda

Thanks Linda The way it follows a distinct path made me think it must be folowing a nerve, hence TN. I'm looking at pain management options as current stuff is not doing much.

Lexia, I don't know if your post-migraine pain is TN or not, but I think (I'm not sure) that the trigeminal nerves ARE the ones that carry the pain of migraine?

Which wouldn't rule out TN due to MS, of course. I have never heard of post-migraine neuralgia. Maybe the migraine exacerbates what is actually underlying TN?

Just a wild guess from someone who doesn't know what she's talking about. Hope your neurologist can help you find relief. Have you seen a headache specialist?

Linda: your day of stabs that comes several times a year sounds pretty familiar. When I get stabs in the face (or elsewhere) they often last on and off over the course of a day or a day and a half.

Sometimes they are in the corner of an eye, but they aren't severe, just attention-getting. The cheek and ear are more likely spots for me.

Nancy