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Old 09-24-2006, 06:02 PM #12
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Chris Chris is offline
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Join Date: Aug 2006
Location: Georgia
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Chris Chris is offline
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Chris's Avatar
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
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Quote:
Originally Posted by BBS1951 View Post
Are any folks here starting Tysabri?

If so, would you be willing to post about how it is going, whether there are any good changes in your MS symptoms, any side effects?

I shall be starting on Tysbari in the very near future. We are waiting on the infusion center to get approved by the TOUCH program. I was in the original studies with it several years ago, and when it was opened up, we found out that I had been getting the Tysabri. I did notice a change in my symptomology when I was on it at that time. I felt less fatigue, and had less trouble with leg and neck spasms.

If you'd like more detailed information, you may private message me here. I'll be happy to share my experience with you. Bear in mind that I was also on Avonex at the same time.

I so hope to be started back on it by the end of Oct. As soon as the infusion center becomes certified I will be having my MRI and going in to sign all the gobs of lovely paperwork that is necessary this time around.
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