Reply
 
Thread Tools Display Modes
Old 03-23-2011, 04:10 AM #1
NewsBot NewsBot is offline
News Gatherer
Community Support Team
 
Join Date: Dec 2007
Posts: 65,355
15 yr Member
NewsBot NewsBot is offline
News Gatherer
Community Support Team
 
Join Date: Dec 2007
Posts: 65,355
15 yr Member
Post Neurologists' Responses to CCSVI (Topix)

Frequently, when the topic of chronic cerebrospinal venous insufficiency comes up, it seems like that also becomes the time for berating neurologists.



More...

(From Topix Neurology)
NewsBot is offline   Reply With QuoteReply With Quote
Old 03-23-2011, 07:04 AM #2
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Quote:
Originally Posted by NewsBot View Post
Frequently, when the topic of chronic cerebrospinal venous insufficiency comes up, it seems like that also becomes the time for berating neurologists.
Psst... that's because CCSVI isn't profitable to the pharmas, who the neurologists are in cahoots (and pay) with!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (03-24-2011), Kitty (03-23-2011), SallyC (03-23-2011)
Old 03-23-2011, 07:17 AM #3
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

"The anti-neurologist virtual drum-beating and sign-waving quickly moves into accusations that neurologists actually do not want to find a cure or even relief for people with MS, as they are: 1) in the pockets of Big Pharma, and/or 2) threatened with the idea that MS may actually be a vascular disease, not a neurological one, which would quickly deplete their patient base."

1) YES

and

2) YES
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (03-24-2011), dmplaura (03-23-2011), SallyC (03-23-2011)
Old 03-24-2011, 12:46 AM #4
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Well, the above may be true, in many, many cases, but think about what a Neurologist's job is. They have to try to diagnose people with all Neurological problems and yet they can never cure "ANY" of their patients. Maybe Neuro-surgeons can, but not MS Neuro's or General Neuro's.

They can treat all sorts of Neurological problems, but their whole specialty must be a real downer, because no one gets cured. The CCSVI Procedure is a treatment, that can help many people. For many it is like a cure, but you still have MS, that "title" doesn't go away even if the symptoms do.

You still may need some treatment drugs for other issues that MS brings, like tremor or spasms. The CCSVI procedure may give a person many/all improvements, but others get only a few benefits, so having a Neuro or a MD to take care of these issues is still important.

They order tests, MRI's, maybe steroids, check your eyes for other problems, etc., but still can't cure you. 150 years proves that one.

Really it is a Vascular specialist or an IR's issue, and the Neurologist really shouldn't be involved, unless they want to. You don't go to your Neurologist if you need a tooth pulled.

I think people are comparing apples and bananas and so are the Neurologists. You should see a Interventional Radioligist or a Vascular specialist and still be able to discuss the procedure with your Neurologist, without getting kicked to the curb, or told what to do. JMO

Thanks NewsBot.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (03-24-2011), dmplaura (03-24-2011), SallyC (03-24-2011)
Old 03-24-2011, 12:16 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Lady's right, you shouldn't even ask about a non Neuro Problem with your Neuro. Ask your PCP for a referral to a Vascular Doc.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (03-24-2011), Lady (03-25-2011)
Old 04-03-2011, 07:24 PM #6
MegansMom MegansMom is offline
New Member
 
Join Date: Apr 2011
Location: central Florida
Posts: 5
10 yr Member
MegansMom MegansMom is offline
New Member
 
Join Date: Apr 2011
Location: central Florida
Posts: 5
10 yr Member
Default

Honestly I could understand them being skeptical in the beginning but most either make fun of it, or Zamboni, quote incorrect facts, and do not follow the research adequately.

Then after thousands of anecdotal precedures being done to still not be curious? I just find it odd that they " supposedly some of the brightest" would not read more and be informed.

My daughter had to change neuro's. She went from a hostile, old guy who made fun of Zamboni and misquoted facts and used scare tactics, to a younger more curious skepticism, but equally uninformed.

When will they learn this stuff? After they lose enough MS patients?

My husband says they suffer from Semmelweis Reflex, which is named for Ignaz Semmelweis who instituted hand washing to prevent childbirth fever ( a killer of many women before microorganisms were known about)and was made fun of....never being recognized until after he died.

We must never let this happen again.
MegansMom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-04-2011), SallyC (04-03-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 04:53 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.