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#1 | ||
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News Gatherer
Community Support Team
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Frequently, when the topic of chronic cerebrospinal venous insufficiency comes up, it seems like that also becomes the time for berating neurologists.
More... (From Topix Neurology) |
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#2 | |||
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Magnate
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#3 | |||
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Wisest Elder Ever
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"The anti-neurologist virtual drum-beating and sign-waving quickly moves into accusations that neurologists actually do not want to find a cure or even relief for people with MS, as they are: 1) in the pockets of Big Pharma, and/or 2) threatened with the idea that MS may actually be a vascular disease, not a neurological one, which would quickly deplete their patient base."
1) YES and 2) YES
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#4 | |||
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Senior Member
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Well, the above may be true, in many, many cases, but think about what a Neurologist's job is. They have to try to diagnose people with all Neurological problems and yet they can never cure "ANY" of their patients.
![]() They can treat all sorts of Neurological problems, but their whole specialty must be a real downer, because no one gets cured. The CCSVI Procedure is a treatment, that can help many people. For many it is like a cure, but you still have MS, that "title" doesn't go away even if the symptoms do. You still may need some treatment drugs for other issues that MS brings, like tremor or spasms. The CCSVI procedure may give a person many/all improvements, but others get only a few benefits, so having a Neuro or a MD to take care of these issues is still important. They order tests, MRI's, maybe steroids, check your eyes for other problems, etc., but still can't cure you. 150 years proves that one. Really it is a Vascular specialist or an IR's issue, and the Neurologist really shouldn't be involved, unless they want to. You don't go to your Neurologist if you need a tooth pulled. I think people are comparing apples and bananas and so are the Neurologists. You should see a Interventional Radioligist or a Vascular specialist and still be able to discuss the procedure with your Neurologist, without getting kicked to the curb, or told what to do. JMO Thanks NewsBot.
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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#5 | |||
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In Remembrance
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Lady's right, you shouldn't even ask about a non Neuro Problem with your Neuro. Ask your PCP for a referral to a Vascular Doc.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#6 | ||
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New Member
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Honestly I could understand them being skeptical in the beginning but most either make fun of it, or Zamboni, quote incorrect facts, and do not follow the research adequately.
Then after thousands of anecdotal precedures being done to still not be curious? I just find it odd that they " supposedly some of the brightest" would not read more and be informed. My daughter had to change neuro's. She went from a hostile, old guy who made fun of Zamboni and misquoted facts and used scare tactics, to a younger more curious skepticism, but equally uninformed. When will they learn this stuff? After they lose enough MS patients? My husband says they suffer from Semmelweis Reflex, which is named for Ignaz Semmelweis who instituted hand washing to prevent childbirth fever ( a killer of many women before microorganisms were known about)and was made fun of....never being recognized until after he died. We must never let this happen again. |
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