After a year of begging to be let off Copaxone, being told how damaging it would be for me, and how fast I would decline, and then all of the trouble I get in the MRI machine, and having to be intubated...you have all been there with me.


The results are ...NO Changes! not one. Its exactly the same as it was one year ago. no extra lesions, no growth of the brain tumor, no disease progression...so...the big boy MD himself called me this morning, and told me he would see me in six months for a follow up. I said AHEM! NO! I will see you in a year. He was upset, but understood. I told him unless I start to have dramatic issues that can be solved by MRI or DMD or other stuff I am going to stay away from him. I will be doing sx management, but no more DMDs or risky testing, or prodding me into new drugs, or even old drugs. enough!

They scared us to peices for a full year of how dangerous it would be to stop my DMD and how risky my behavior was...well, the test results show it to be NO change! not better, not worse. it just is.

That's wonderful news! You proved what many of us are saying every day. Sometimes....less is more.

that's great news dej.
how did the anesthetist manage you?
how did it work? how do you feel?

well congratulations, Dee gee bow! Unfortunately, no change in the tummy either...
now, stop gloating

The anestheisologist refused to allow me into the MRI without being intubated, since my tummy back washes when I lay flat. in sight of the MRI machine I scooted to the MRI table thingie, and then he pumped me full of drugs. I was intubated. I dont remember a thing. After the tube was removed I woke spluttering, coughing, and gagging. Even wet myself for good measure. my throat was very sore for the first day after, but today its much better, and should be gone by tomorrow. The MS MD didnt seem to care that it took a truck load of people with tubes, and drugs to get me safely thru the MRI, he was quick to want a new one in six months! nope, nope, nope. I will consent to a new MRI in 2 years, and will consent to a new neuro exam in one year. At this point I am screaming to STOP HELPING ME! You are helping me into an early grave! I think sometimes they are just guessing.

So, yea me! hooray! Stopping my copaxone didnt hurt me one tiny bit. As a matter of fact I feel so much better for stopping it, that I dont regret it one bit.

Thanks you guys!

I am so glad to hear your good news, Dej...and I admire your bravery in standing up for what you want in treatment...

Woohoo!!! Great news, Dej!!!


(Psssssttt, I don't miss Copax either!)

Awww, did you see Viseeu used Lily as her Avatar? how sweet is that?! I love that little kitty. I just scolded her for dancing across the couch and trying to literally climb the wall. there is nothing there, and no reason to be doing that, but she kept at it. I gave her a snack and distracted her. Silly cat!

dej,

i just don't get drs. where is there compassion and the ability to look at the entire person? drs don't give their pts enuf credit for knowing themselves and sometimes knowing what is best for them.

best of luck to you this next yr.