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04-05-2011, 02:45 PM
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My MS Specialist, at KU Med Center, although interested enough (in 2009 or 2010, I think) to seriously consider applying to be one of the sites/physicians to conduct a research study on CCVSI has, at my last several visits, been very wary about it now.
She believes there are still too many unknowns (ie: does MS cause the vein blockage, or does the vein blockage cause MS, etc, etc) and too many risks. My MS is not at a stage, even though I currently receive disability (SSDI) that I need to start trying risky, unproven procedures. I'm not telling others what to do. But, just sayin'... CCVSI is not for me, at this point. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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