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Why is there no mention of CCSVI on this website ?

 
 
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Old 04-05-2011, 02:45 PM #11
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FaithS FaithS is offline
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FaithS FaithS is offline
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Join Date: Jan 2008
Location: Kansas
Posts: 971
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My MS Specialist, at KU Med Center, although interested enough (in 2009 or 2010, I think) to seriously consider applying to be one of the sites/physicians to conduct a research study on CCVSI has, at my last several visits, been very wary about it now.

She believes there are still too many unknowns (ie: does MS cause the vein blockage, or does the vein blockage cause MS, etc, etc) and too many risks.

My MS is not at a stage, even though I currently receive disability (SSDI) that I need to start trying risky, unproven procedures.

I'm not telling others what to do. But, just sayin'... CCVSI is not for me, at this point.

~ Faith
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aka MamaBug
Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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"Thanks for this!" says:
dmplaura (04-05-2011), Lady (04-05-2011), SallyC (04-05-2011), viseeu (04-06-2011)
 

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