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Old 04-09-2011, 09:42 AM #1
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sassy sassy is offline
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Join Date: May 2007
Location: Michigan
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sassy sassy is offline
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Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
Default Back and with a question about PBA

I was dx'd with PBA (pseudo bulbar affect) this past week but I have surmised for years now that I had it but couldn't seem to get through to my doctors that my occasional crying was not acceptable to me.

Well, this week during one of my bad episodes I happened to have an appt with my new neurologist and he asked me several questions about what happens before, during and after. He said the crying seems to be during inappropriate times. He has given me samples of Nuedexta(new drug on the market) to try and of course it is loaded with lots of possible side effects! How many drugs can you be on that can be rough on the liver and not get liver failure! But so far so good none of the other meds have destroyed my liver and hopefully this one won't either.

For those that don't know PBA is uncontrollable laughing or crying during inappropriate times. I would think laughing would be even more difficult but inappropriate crying has sure been embarrassing to me for years.

Keeping my fingers crossed that Nuedexta does the trick for me. For 1 week you only take 1/2 dose and then start on full dose if no adverse effects.

So...how have all of you been? good I hope!
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