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Old 04-12-2011, 05:58 AM #9
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sassy sassy is offline
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Join Date: May 2007
Location: Michigan
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sassy sassy is offline
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Join Date: May 2007
Location: Michigan
Posts: 681
15 yr Member
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Thanks all!

@Blessings-yup, every doctor I ever saw knew about my crying spells but said there is nothing wrong with crying. Wrong! It is embarrassing, it kept me from expressing my true feelings, and it is difficult to even speak when you are crying as hard as I do. Try to explain to someone on the phone when you call about their services that ignore the crying it is just something I do when I am the LEAST bit emotional. grrrr...

@Kitty, thanks for the article. I was trying to find something written in laymen terms so I could print it and give to family, friends and co-volunteers. That article is perfect and the med they talk about at the end is what I am on but they called it by a different name.

Deijbo, maybe when you flare the brainstem or the part of the brain is affected that causes PBA and you have the symptoms for just during that time. Just keep it in mind and if it becomes a problem more often ask your dr. about it.

Thanks Blessing! The med does seem to be working, hard to believe something that has a cough syrup ingredient and basically quinine works and how the heck did they come up with those ingredients and PBA. Weird! But glad it's here for me.

@Sally, thnx for the welcome back. I have been busy volunteering for the Michigan Ch of the MS Society. I even got to go to DC and talk with our legislators about some things that are important to us with MS. I met FlyGirl while I was there (Cheryl). That was our first face to face meeting.

The MS has been treating me pretty mildly! But I guess the business of volunteering caught up with me and the PBA kicked into high gear. I am even co-facilitating a 6-week program on Fatigue right now and I don't have enough sense to listen to what I am teaching.

Thanks again all for your concern and even tho I don't get here often I think of you and wonder how you all are doing.
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If someone listens, or stretches out a hand, or whispers a kind word of encouragement, or attempts to understand a lonely person, extraordinary things begin to happen. --Loretta Girzaitis
Trust that your abilities are stronger than your disabilities - Maxene Kupperman-Guinals
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