I had an appointment with my MS specialist this past Tuesday. He went over my MRI scans with me, saying there was no change.

He said that he believes there is something there other than the MS, and he's going to do his best to find out what it is.

I had a lumbar puncture, which wasn't too bad. However, because of my age and weight, he wasn't able to pierce the spinal canal to retrieve spinal fluid. He then had me sit on the exam table, leaning over with my arms on a walker and my chin tucked on my chest. That worked perfectly.

He is also sending me for a sleep study due to snoring and fatigue. I'm also to begin PT to help with my walking/balance.

He is having me wean myself off of Flexeril first and then Baclofen. He said that these may be making me excessively sleepy. He did say if my muscle spasms return and are bad, I'm to restart the meds.

Time will tell. I'm trying to think positively and not obsess about the diagnosis, at least until I get the diagnosis.

im glad he is being thourough with you. I have several diseases. some caused by MS and others not.

MS
Sjoghrens
Gastroparesis
balance disorder


it is entirely possible to have more than one auto immune disease. Many have arthrititis and MS or diabetes and MS or other such combos. Im glad your MD isnt stopping at the MS gate saying thats that.

Good luck.

Please let us know what he tells you. I'm so sorry you're having to go through the waiting game again.

(((((Maryann)))))

How is Arnie doing?

That's certainly bittersweet news. Nobody wants ONE disease, much less more than one, but if something else is diagnosed that can be treated and relieve some of your symptoms, then that would be a plus.

I'll be anxious to hear your updates. Good luck on not obsessing. I do that so well that I'm thinking of hiring out.

Maryann- How are you sweetie? Welcome to the "Wow we found more carp wrong with you" club.

Let's see, before I had MS, I was dx'd with Graves Disease, and I was Bipolar.

Now I also have MS, Degenerative Joint and Disc Disease, Arthritis, Neurogenic Bladder, possible Schuerman's Disease and who knows what else.

Hopefully they can figure it out and fix something for ya.

Hope all is well aside from that.