ok, im fed up with MS. I am serving eviction papers. I am tired of the bladder issues, the spastic issues, the visual issues, the balance issues, the cog fog and the BS that goes with this stupid disease. I will gladly hand back my special parking permit to be able to park in the back of the lot again. ENOUGH! Im just done with this carpola.

I never wanted to do it

We have a choice? I was not aware! If that's the case then I'm kicking mine to the curb. I'm getting a little fed up with it, too.

I will take it even farther. I will give up my car.

But I no longer drive...

went out for a nice dinner with neighbors. the noise, the lights, the crowd, I felt like I was being assaulted. I flinched each time my friend spoke. She leaned in and asked if she was spittling on me when she spoke because she saw me flinch! I had to explain that I was in an MS thing and I am easily overwhelmed by noise, lights and so forth. I cant even go out to dinner! It follows me everywhere! Why cant it wait in the car? Why cant it wait at home? I cant think, I cant walk, I cant focus and now when i get tummy meds that work I cant go out to eat? NOT FAIR! Dad gummit, not fair!

Not my cup of tea either, Dej..
I want more sugar and cream and less Lemon..

Dej, I wonder why we all got picked?

I'm 30 years dx'd this month.

For all of us

I'm so sorry things are so rough for you right now Dej Would give anything in this world to make it better for you but can only pray, which I do every day. The MS club just sucks
You're right, it just isn't fair.

I paid my dues with a bad case of Breast cancer that was supposed to take me out before I turned 30. I suffered thru massive Chemo, hair loss, loss of body parts...so I was supposed to be home free? no??

im exhausted, but cant sleep at night.
im spastic but muscle relaxers make me too loose.
I cant see in low light, but too much light overwhelms me!
Im in pain, but pain pills constipate me.
My tummy is broken, but I must eat to survive.
My brain works, but the words on my tongue dont match the words in my head.
I am a writer, and cant seem to get my ideas back onto the page where they belong.
I love love love driving, but my car sits in the driveway now.
I love travel, but go no where.

ok, enough whine. Anyone got cheese? Thanks for commiserating. it helps to know I am not alone.

My friends, especially my boyfriend, have a really hard time comprehending why I get in 'freak out mode' sometimes. I try to explain to them that messages run in the body at like 20,000 mph and due to the damage of this crappy disease, it has slowed all those messages down, so when there's 15 things going on all at once I get anxious and FREAK OUT real quick, I hate it. I had never been like that before MS came into my life. It's quite crazy how it reeks havoc on our bodies. I totally would give mine back in a heart beat. I miss working 40 hours a week, I miss hanging in the hot heat and being active, I hated running, but I would LOVE to be able to run again.

I've had to reduce hours at work, so the owner is only allowing me 9-10 hours a week
My boyfriend said to me the other day when I was taking him to work.. "you're so lucky you can just lay in bed all day and don't have to go to work." and I just broke down and started crying. I know he wasn't trying to hurt my feelings or anything. But I would much rather be working and doing things that healthy 23 yr old do, but I can't because of all the limitations.

AND it REALLY hurts my feelings when my Grandma asks how I'm doing, and I mention that I've had alot of neuropathy that day and still can't feel my hands and she says in return "well if it makes you feel any better my back is just killing me." like no, not at all grandma. it makes me feel worse actually because you're 62 years old, you have years of wear and tear on your body, you are supposed to have aches and pains, I at the age of 23 should not feel like I am 48 on my insides...
people just don't get it.

If you find a place to return this icky disease let me know!