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The rising cost of MS drugs

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Old 04-17-2011, 10:36 AM #1
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Originally Posted by Erin524 View Post
If I try anything else, it'll be LDN. Just need to find a doctor to give me some.

Idiot, We gave you the name of a Doc who prescribes LDN. Whuz yer problem?
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Old 04-17-2011, 01:20 PM #2
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a weird fear that the person wont believe that I have MS and will hang up on me when I ask for it.

Sometimes when I try asking a doctor for anything, my mouth gets all weird and the words I'm trying to say dont come out right, and then I end up looking like a nutjob or a drug addict, or something.

I think I'll try calling that doctor this week and see if I can be coherent and get it done already.
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Old 04-17-2011, 04:17 PM #3
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Originally Posted by Erin524 View Post
a weird fear that the person wont believe that I have MS and will hang up on me when I ask for it.

Sometimes when I try asking a doctor for anything, my mouth gets all weird and the words I'm trying to say dont come out right, and then I end up looking like a nutjob or a drug addict, or something.

I think I'll try calling that doctor this week and see if I can be coherent and get it done already.
I don't see where there'd be a problem with you asking for LDN. It's not a narcotic. It doesn't make you high, or feel any different. The only difference you might feel is less MS symptoms.....and that would be a good thing.
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Old 04-17-2011, 05:38 PM #4
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I've asked a few local doctors for it, and they think I'm nuts for asking.

also a bit scared that if I do get a Rx that it wont work for me, and I guess I'm afraid of the potential for being disappointed. I think I'll try calling this week tho to ask for it.
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Old 04-17-2011, 04:15 PM #5
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Idiot, We gave you the name of a Doc who prescribes LDN. Whuz yer problem?
Sally, you're waaaaay to meek and mild!!
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Old 04-18-2011, 09:28 PM #6
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If I didn't have insurance I wouldn't afford these meds. Between the Copaxone and Nuvigil, they cost more than I make in gross pay per year. I sometimes wonder if my employer is aware of the amount of my RX claims or if that is kept under wraps since it is such a large company. I work my tail off so they won't think of me as a burden.
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Old 04-21-2011, 10:08 PM #7
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Default ACTH shots
Prednisone didn't work for me, methniprednisone (sp) didn't work for me. The other meds weren't out then except for the CRAP meds. ACTH (ACTHAR shots) were tried. They made me feel 100% better and lifted the acute MS attack.

ACTH doesn't slow MS but does lift the attack. To me, they work so much better than these newer drugs with all their side effects. Before ACTH became expensive, I would get a 7 day supply for $45 through NORDS.
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