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Old 03-30-2011, 03:31 PM #1
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Default Gilenya Study
There is a Gilenya study in Elk Grove, IL starting up soon. My neuro said it was ok if I wanted to try, so I am going to. They are comparing satisfaction levels with DMD's not effectiveness. They give med for 6 months. There is no placebo and it is an open study so you will know which med you are on. I saw the ad in today's Chicago Tribune. It's for RMS. If I get selected, I'll keep you posted.
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Old 05-10-2011, 11:50 PM #2
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Quote:
Originally Posted by mochagirl13 View Post
There is a Gilenya study in Elk Grove, IL starting up soon. My neuro said it was ok if I wanted to try, so I am going to. They are comparing satisfaction levels with DMD's not effectiveness. They give med for 6 months. There is no placebo and it is an open study so you will know which med you are on. I saw the ad in today's Chicago Tribune. It's for RMS. If I get selected, I'll keep you posted.
Hi Mochagirl. Cool, I'm interested to read about your experience with that drug if you get selected. I used to live in Elk Grove, Elk Grove, CA though in Laguna Creek. I know it's different but it make me feel sort of closer to you.
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Old 06-17-2011, 09:07 AM #3
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Default Off the injections!!!
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Hi Mochagirl. Cool, I'm interested to read about your experience with that drug if you get selected. I used to live in Elk Grove, Elk Grove, CA though in Laguna Creek. I know it's different but it make me feel sort of closer to you.
I got selected for Gilenya. It's only been 2 days but I feel like a ton of bricks have been lifted off my chest. I don't feel the impending dread of taking an injection and I feel like I have a piece of my life back.
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Old 06-17-2011, 10:57 AM #4
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Thank you for trying this study. I hope it helps you and all of us!
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Old 06-17-2011, 11:46 AM #5
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I'm glad it seems to be helping you Please keep us posted, MG..
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Old 06-28-2011, 04:32 PM #6
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Default It's been a week
It's been a week since I started taking gilenya and so far no side effects. I go get my blood work done on 7/11.
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