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05-14-2011, 08:34 PM | #1 | ||
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Member
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Good thought, Sally! And those are beautiful May flowers.
Today my neighbor brought some plants to put in my long planter in front of the house. I have not been filling it with flowers, even though I'd like to, because it's one more journey to take with my sore feet, to go buy the plants, get them in and out of the car, dig up the dirt, and put in the plants. My neighbor started the planter and says she will get more plants for me every time she buys for herself...and she buys lots. |
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04-25-2011, 02:01 PM | #2 | |||
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until recently I hadn't thought a lot about what my MS felt like, but after trying chantix to quit smoking and gaining a lot of weight in the process (I lost 40 pounds in 2006/2007 that is now back /cry) I find myself 'feeling' the MS, not terrible/horrible/awful, but annoying...
I'm wobbly again and fatigue suddenly comes on me for no apparent reason--I sleep for 8 hours, get up, do a few things and I'm exhausted! so, now I am trying to slowly get back to exercising/stretching, low level stuff and see if it helps with the wobbly and fatigue. all in all, my MS hasn't been that bad on me so I try not to whine or complain about things. this Fatigue sucks though
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. . . first flare 7/22/2000
Dx 8/3/2000 RRMS-- no relapses since Betaseron 11/15/2000 Didn't miss a single injection the first 8 years. Now take about 6 shots off a year . Great minds discuss ideas, average minds discuss events, small minds discuss people. Hyman Rickover, "The World of the Uneducated", "The Saturday Evening Post", November 28, 1959 |
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04-25-2011, 03:03 PM | #3 | |||
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Grand Magnate
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MY HANDS HAVE TREMORS & shakes. it's harder to carry things, to write, and to be at the computer.
FEAR...my eye dr saw some MS changes in my eyes and sometimes i have visual disturbances. i'm often off balance. i do the 2 step a lot in my home. pain almost all the time. the less i do the better i feel but i have to do more to stay moving. use it or lose it. heat will put me down. almost paralyze me; eyesight, thinking, fatigue, walking. i feel like i can't move. i'm ordering a cooling vest. i refuse to think about all this on a daily basis. i take 1 day at a time and don't often look beyond that. that's how i stay positive.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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04-25-2011, 04:00 PM | #4 | |||
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Member
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My feet feel like they are in vice grips -- from side to side and top to bottom -- and feel like they are broken when I try to walk sometimes.
My hands and arms go numb at random times throughout the day. I get lightheaded, fuzzy-headed, and easily knocked off track of what I am doing and thinking. I never know if my bladder or bowels are going to work. But sometimes the emotional pain is the worst . . . the not "being" there when my partner needs me, the destroyed moments where there could be intimacy, the loss of patience with myself and others . . . and the wondering if I will ever be able to look forward to anything again. Oh, and the having many more bad days than good . . . I can not seem to plan anything anymore without having a "back-out" plan . . .
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We live in a rainbow of chaos. ~Paul Cezanne . |
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04-25-2011, 09:13 PM | #5 | |||
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Elder
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I don't wanna talk about it...
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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04-25-2011, 11:59 PM | #6 | |||
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Wisest Elder Ever
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After a long and very tiring day today (I overdid it majorly) I realize that I have precious little tolerance for "drama" anymore. I don't know if that's just an aging thing or an MS thing or maybe a little of both!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | dmplaura (04-26-2011) |
04-26-2011, 12:05 PM | #7 | |||
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In Remembrance
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(((((Kelly)))))....Whuh happened, dear?
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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05-06-2011, 01:58 AM | #8 | |||
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Junior Member
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You guys are so tough I admire you all. I have a b12 deficiency and MS like symptoms and thought I had MS until I got everything checked and tracked down my Ulcerative Colitis and b12 issues. I have some permanent damage but can deal with it since it is stable and really nowhere anything like your issues in severity. I am almost embarassed to even be a member here at this point as i feel not worthy.
I remember how scared I was and reading your posts has me awestruck at your calm and strength dealing with your issues. You are truly an inspiration for me. My mother was in a nursing home years ago and her roomate had MS and I learned a lot about it as a teenager there. God bless all of you. |
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05-06-2011, 06:09 AM | #9 | |||
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Member
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My head is filled with fairyfloss (cotton candy) I know that my thoughts are there, but when I try to grab them they are gone - just disappeared, my legs are filled with concrete and my feet are filled with hot coals at night and .....other parts of me feel like I have a cattle prod implanted.
Added to that, every afternoon fatigue hits and someone lets my tyres down and the road feels so much rougher. I am not always like this - this is how I feel on a bad day. Lyn Last edited by Lynn; 05-06-2011 at 06:10 AM. Reason: spellling |
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04-26-2011, 12:56 PM | #10 | ||
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n/a
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Wearing thigh high fishing boots that are too tight and filled with cold water and sand. And they never come off
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"Thanks for this!" says: | AynaDee (05-03-2011), dmplaura (05-04-2011), Kitty (04-26-2011), lefthanded (04-27-2011), SallyC (04-26-2011) |
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