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Old 05-14-2011, 08:34 PM #1
Mariel Mariel is offline
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Good thought, Sally! And those are beautiful May flowers.
Today my neighbor brought some plants to put in my long
planter in front of the house. I have not been filling it with
flowers, even though I'd like to, because it's one more journey
to take with my sore feet, to go buy the plants, get them in
and out of the car, dig up the dirt, and put in the plants. My
neighbor started the planter and says she will get more plants
for me every time she buys for herself...and she buys lots.
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Old 04-25-2011, 02:01 PM #2
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until recently I hadn't thought a lot about what my MS felt like, but after trying chantix to quit smoking and gaining a lot of weight in the process (I lost 40 pounds in 2006/2007 that is now back /cry) I find myself 'feeling' the MS, not terrible/horrible/awful, but annoying...

I'm wobbly again and fatigue suddenly comes on me for no apparent reason--I sleep for 8 hours, get up, do a few things and I'm exhausted!

so, now I am trying to slowly get back to exercising/stretching, low level stuff and see if it helps with the wobbly and fatigue.

all in all, my MS hasn't been that bad on me so I try not to whine or complain about things. this Fatigue sucks though
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Old 04-25-2011, 03:03 PM #3
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MY HANDS HAVE TREMORS & shakes. it's harder to carry things, to write, and to be at the computer.

FEAR...my eye dr saw some MS changes in my eyes and sometimes i have visual disturbances.

i'm often off balance. i do the 2 step a lot in my home.

pain almost all the time. the less i do the better i feel but i have to do more to stay moving. use it or lose it.

heat will put me down. almost paralyze me; eyesight, thinking, fatigue, walking. i feel like i can't move. i'm ordering a cooling vest.

i refuse to think about all this on a daily basis. i take 1 day at a time and don't often look beyond that. that's how i stay positive.
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Old 04-25-2011, 04:00 PM #4
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My feet feel like they are in vice grips -- from side to side and top to bottom -- and feel like they are broken when I try to walk sometimes.
My hands and arms go numb at random times throughout the day.
I get lightheaded, fuzzy-headed, and easily knocked off track of what I am doing and thinking.
I never know if my bladder or bowels are going to work.

But sometimes the emotional pain is the worst . . . the not "being" there when my partner needs me, the destroyed moments where there could be intimacy, the loss of patience with myself and others . . . and the wondering if I will ever be able to look forward to anything again. Oh, and the having many more bad days than good . . . I can not seem to plan anything anymore without having a "back-out" plan . . .
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Old 04-25-2011, 09:13 PM #5
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I don't wanna talk about it...
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Old 04-25-2011, 11:59 PM #6
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After a long and very tiring day today (I overdid it majorly) I realize that I have precious little tolerance for "drama" anymore. I don't know if that's just an aging thing or an MS thing or maybe a little of both!
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Old 04-26-2011, 12:05 PM #7
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(((((Kelly)))))....Whuh happened, dear?
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Old 05-06-2011, 01:58 AM #8
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You guys are so tough I admire you all. I have a b12 deficiency and MS like symptoms and thought I had MS until I got everything checked and tracked down my Ulcerative Colitis and b12 issues. I have some permanent damage but can deal with it since it is stable and really nowhere anything like your issues in severity. I am almost embarassed to even be a member here at this point as i feel not worthy.

I remember how scared I was and reading your posts has me awestruck at your calm and strength dealing with your issues. You are truly an inspiration for me.

My mother was in a nursing home years ago and her roomate had MS and I learned a lot about it as a teenager there. God bless all of you.
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Old 05-06-2011, 06:09 AM #9
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My head is filled with fairyfloss (cotton candy) I know that my thoughts are there, but when I try to grab them they are gone - just disappeared, my legs are filled with concrete and my feet are filled with hot coals at night and .....other parts of me feel like I have a cattle prod implanted.

Added to that, every afternoon fatigue hits and someone lets my tyres down and the road feels so much rougher.

I am not always like this - this is how I feel on a bad day.

Lyn

Last edited by Lynn; 05-06-2011 at 06:10 AM. Reason: spellling
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Old 04-26-2011, 12:56 PM #10
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Wearing thigh high fishing boots that are too tight and filled with cold water and sand. And they never come off
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