Some MS questions

Kitty · 05-11-2011, 10:42 AM

Californiafriend

It's a scary time and you're reacting like many or most of us did. The unknown is almost scarier than actually knowing exactly what you're dealing with.

I was diagnosed in 2005 but think I've probably had MS for years before that. I just didn't know what it was.

Like Snoopy said you can lead a relatively normal life. Just might have to make a few adjustments along the way.....but whose life doesn't require that from time to time.

I've had some pretty disabling flare ups along the way and it has taught me to appreciate things so much more than I did before.

I'm really sorry that you feel like your husband would be less than supportive to you during all of this. Sometimes it takes a life changing event like this for us to really see others in their true light. Sometimes that's a good thing and sometimes not so much. But however it works out please know that you are still you and your having MS or something else doesn't define you as a person. I hope your husband can realize that as well. I also hope he can realize that it could just as easily have been him struggling with this situation.

Please continue to post here and don't be afraid or hesitant to complain, whine, laugh, cry, be afraid or express any other feelings you happen to have. We all support each other and totally understand the emotional ups and downs of all this.

You're among friends here.

californiafriend · 05-11-2011, 11:38 AM

Thanks everybody so much for your comments/concerns/prayers/ and info...you all are so strong and are very inspirational. You all have made me feel more sane than i have in a while since having these symptoms

i hope all goes well for all of you also and im sure i will be keeping in touch thru this forum as its currently my only real means of support

NurseNancy · 05-11-2011, 09:05 PM

dear cal,

it's ok to be scared and worried. we've all been there and i, we understand.
however, don't think too far ahead as you don't know what will or won't happen.

i've been dx'd for 8 yrs. my neuro thought i'd be in a wheelchair after 3 yrs.
i'm not. i'm still able to walk and drive. sure i've had to adjust to some things and make accommodations; like using a rollator and scooter at times. but all in all i'm pretty stable.

5 yrs after i was dx'd with MS i was dx'd with breast CA. that was a scary time. i had lumpectomies and radiation and so far i'm CA free. i could get really scared if i let myself think about it negatively.

what i decided to do was take only 1 day at a time. no one can predict the future, not even our drs.

use us to help you up. try to think of some answers to your problems. like maybe get involved with a support group once you have a dx. join a church?
think of ways you might do something, follow an interest so you can make a couple of friends. try to widen your horizons.

IF you have MS your local MS society can be a big resource for help.

just take one day at a time. even start a journal. write to us daily. we're here.

jprinz99 · 05-12-2011, 10:18 AM

there are no other words for it except to say: Limboland sucks, MS sucks and life isn't always fair. Not trying ot be harsh, but let's face it... none of us woke up one day and said I think I'll go buy myself some pretty new MS.

Being freaked out, frightened & depressed is 100% normal. It is also normal for human being not to want to give out bad news. I think a lot of doctors feel the need to diagnose you/prescribe you something treatable/fixable So, IMO during that time of them being unsure, they grasp at what sound like ok answers. (if they said "uhh, I dunno" we would probably want our money back LOL) I got called a hysterical bored housewife, fibro, etc. Sometimes the answer is not what they want to say (they are scared of unknowns too) or what we, as patients, want to hear. Heck, I would have loved to hear it was somehing easily fixabe like an ear infection

Remember we are all hear and we have all been exactly where you are right now. The best advice I got was inhale, exhale, repeat. Stupid as it sounds it works

and...Just think of all the cool new friends you are going to make here gentle hugs

californiafriend · 05-13-2011, 12:57 PM

Thanks everyone for your support, i look forward to coming on here everyday now so i feel more connected with people that are dealing with what i am

thanks so much for your concerns/thoughts/uplifting comments

Kitty · 05-13-2011, 01:05 PM

Quote:

Originally Posted by californiafriend

Thanks everyone for your support, i look forward to coming on here everyday now so i feel more connected with people that are dealing with what i am

thanks so much for your concerns/thoughts/uplifting comments

Be sure to visit us in The Stumble Inn, too. We get pretty wild over there.......

.......well, as wild as a bunch of women with MS can get!

Here's the link: http://neurotalk.psychcentral.com/forum102.html

karilann · 05-14-2011, 06:49 PM

Quote:

Originally Posted by californiafriend

Just reading your responses brought tears to my eyes because it makes me feel not so alone. The fear and anxiety that this has caused has made me contemplate suicide daily (although since its against my religion i dont think i would) Im really scared and what scares me even more is i dont have family members or friends that would really help me if i needed it, my husband is pretty "worldly" and i dont think he would stay very long with me if i had it being that he is still young and would want a "normal" life and family, which is another fear that ill be without...im only 26 and i know this sounds awful but i wouldnt want to live for the next possible 70 years waking up everyday wondering whether i would be able to see/speak/walk/move/cognatively function that day...how would i live? how would i work? especially without any help...Im so scared guys you all are so positive that i hate to be a damper or talk so negatively and morbid but ive never really been one to accept things and try to make the best of it even though im trying to..I got more blood tests results back that said my rhematoid was high and i had a sllight above normal ANA which tells me that its probably autoimmune and after searching thru every autoimmune disease out there none of my symptoms fit any criteria except for MS...thanks for all your prayers and concerns and for allowing me to vent on here and to share my fears, you all are so beautiful for caring so much about the people on here and showing support

You sound just like I did when I was at this stage of trying to get a diagnosis.
DON'T PANIC! I was diagnosed in 2002 and am still walking, talking and doing most things fairly normal. If you get a diagnosis that puts so much fear in you that you contemplate suicide, go see a councilor. Its the first thing I did and I think it really help get my thoughts in order. I also had everyone around me ready to "bail" and they have not. Read the last part of my signature about worrying........its priceless. I used to lock myself in the bathroom and take a bubble bath and cry my eyes out.....then one day I stopped crying and realized all I had to do was take it one day at a time.

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