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Serrono (rebif) found guilty of kickbacks to MS MDs

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Old 05-18-2011, 06:48 AM #21
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When I stopped taking Betaseron it took more than a year for the pink splotches to go away from my legs, arms, belly and bum. it looked rough and rugged, and sunburned. tiny increments each week and when the year was up, it was much better. When I would inject Beta on the other side of my tummy it would light up the splotch on the far side, not just the new shot spot.

Glad you are getting checked out.
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Old 05-19-2011, 01:14 AM #22
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I wonder how much the doctors that testified to congress that tobacco was safe got paid? Or perhaps just congress did?
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Old 05-19-2011, 08:27 AM #23
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Hey AynaDee,

Sorry, but this is longish since I'm trying to be diplomatic and balanced, and at the same time, offer info without bias ... and I'm irked so it isn't easy.

The nurse might be right, it might be a "common side effect" but she knows this from a phone call? Telepathic diagnostic capabilities? Perhaps she's a seer as well as a medical professional and that enables her to differentiate OVER THE PHONE between common side effects and more serious, and less common ones.


I spent time yesterday looking for articles, and for images, then writing and re-writing a response, but bottom line is a) I am not a DR. and you need to be seen by one, and b) I am also not clairvoyant/a seer and I am responding to verbal descriptions much as the "nurse" did. Difference is, she is the one that should have said, well we probably need to have a look just in case...not me.


1st: Mine were like 3" blobs, but they spread directly from the injection site and were red ...never purple, and I saw a Dermatologist even before my neuro saw them. Neuro wouldn't risk it, ah well.

2nd: This isn't true of any other DR. I heard of, but mine does not allow abdominal injections, period...a higher risk of tissue necrosis. Now this happened more with Betaseron, but it can happen with any injectable and this is one reason why verbal descriptions are no good; does purple mean ...... or does it mean; what is the quality/texture/....of the area....?

3rd: I noticed that you are quitting Rebif, you still need to be seen. PLEASE, get your Family Practice person to look at your reddish purple spots, and then
1) come back here and laugh at this ole toot for being worried and irked... ;-) and
2) find a different neuro


My dogs are calling, yup, the pup just howled that they need to find a different owner....

tante

[quote=AynaDee;771387]
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Originally Posted by tante View Post

I explained what they looked like to the nurse and she said that is a very common side effect of the drug. But the spots on my legs are big probably the size of a half dollar, the skin isn't as dry and dead looking as my abdomen. The abdomen spots are slightly smaller but the skin is much worse than my legs, almost looks like a peeling sunburn

I feel like they blow me off all the time, like they're burnt out on the MS community. They're very neglectful like trying to put me on drugs that I have already been on and have almost killed me. Or that the horrific pain I was experiencing on the right side of my body couldn't possibly be my liver because the liver is on the left side of my body (the docs at the hospital about fell over when I told them that my neuro's nurse told me that). AND I was on Rebif for two years before I had any blood work done.

Yeah, now that I'm reading back through that, I'm thinking I need to find a new neuro

What's even suckier about that is he's an MS specialist.
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