not really new
 

I'm not really new, just never have posted here before.
The other forum, which inspired this one, has changed yet again and just is not what it once was.
I've had MS for way over a decade, bad for a while, stable for a while, getting worse now. During the better times I try not to dwell on it and don't spend much time reading about it. Now that things are going downhill again, here I am.
Anyway, I will read a lot, and post sporadically when I think I can help, or need help.
Wishing all of you the best.

Welcome to NT, Goldie! So glad you decided to join us here. Join right in.....we're a friendly bunch. :hug:

Welcome Goldie, nice to have you here..:):hug:

MS since May 2007
 

My name is Colleen, I was dx with MS in May 2007. Symptoms have gotten worse since Jan. 09. I had a relapse in Sept. 10 which resulted in me collectng disabilty from work and now SSD. I am currently doing cytoxan treatments and physical therapy. MS only effects my legs which are really stiff and require me to use a walker to get around. My family completely supports me but I still feel very alone and I am loking for people to connect with who understand how lonely MS can be.

Welcome home Xray/Colleen. I'm so glad your Family is supportive..:) But, even though they mean well, they don't understand, as the members here do.:grouphug:

Thank you for joining us, pull up a chair.:)

Hi everybody.

Like Sgt Bob I'm not yet diagnosed but fear the worst. I have an appointment with a neurologist in a month. So until then I figured I'd come here. For a few weeks I've had tingling in my torso. Not the pins and needles kind associated with numbness but more of a squirming kind. I usually get it on my stomach, lower back, shoulders, and forearms. I only get it when I'm wearing clothes and pulling the clothing away from my body relieves the tingling. I've had these tingling feelings years ago but it was so minor I paid it very little mind. I also get pangs of itching in the same spots but that is more rare. The past week or two i've had trouble with stumbling and feel kind of out of it and dizzy. Also very tired during the day. The last few days i've had some numbness and lack of coordination in my right ring and pinky finger. That lasted for about two days. I've also had some cognitive problems (reading, forming words, math etc.)

On a side note I've been taking Lyrica for 2 months which i know can produce a bevy of symptoms. And to make my story even more strange, I was on the Lyrica to ease scrotal tingling i've had for 13 years. The Lyrica has helped a great deal but now I have these other symptoms. Some of you may have read my other posts about this other mystery condition. I find it strange that the Lyrica has eased the tingling in one area and now I have it somewhere else.

Despite what may be going on with the tingling i'm having below the waist, I can't help but worry that I may have MS. These new symptoms seem like they are spot on for MS. I know that since i've had scrotal tingling for 13 years that its going to get in the way of any other neurological diagnosis.

What I'm basically wondering is if this sort of sensitivity to clothing tingling is normal with MS. I know Lyrica can cause balance issues, fatigue and cognitive problems but i've searched far and wide and haven't found any tingling or numbness related to Lyrica. Not to mention, I was on Lyrica months ago without any side effects like this. I eventually took myself off for a month and started again in August. I guess I'll start there.

I feel bad coming to this site not having been diagnosed yet but it seems like the obvious place to start. I'm 33 and three months ago started a career as a fire fighter. Finally getting my life going in the right direction and now this. I worry that a diagnosis of MS will of course prevent me from continuing in my career.

Any info would be great. I know I can't be diagnosed via the web but lets face it, you all know more about this stuff than most professionals.

Thanks in advance.

Hi elmwood..:Wave-Hello:, Welcome to Neurotalk..:) , So glad you could join us. Sigh...33. I've had this darn disease for longer than you have lived.:eek:

Come on in and join us while you wait for your DX. I hope it's something simpler than MS, but MS is not the worse thing that could happen.

We are all here managing to live a pretty full, good life, while dealing and here to help you and understand, as I'm sure you will support us, too..:hug:

Hello, I'm new here. I currently have an appt. next month to see a neurologist. I'm one of those in limboland. I think at some point today I will try and make a thread with some more information. I hate to be one of those "Does it sound like...?" people but after years of frustration I think I just need someone to talk to.

As much as I hope to not join this "family" because of a neuro issue...you all seem like a very active and welcoming "family". So if this is something I will be dealing with, you will likely see a lot more of me. I hope that's okay :grouphug:

Welcome Home, Monkey:). Waiting for a DX can be frustrating and lonely. This is a good place for you to wait your turn. Come on in and join the chatter.:hug:

Thank you :hug: