Welcome again, Candace..:)

Hello! New, Confused and FRUSTRATED!!!
 

Hello Everyone! I am new to this forum. Try to make this short (if possible). I was dx with fibromyalgia 8 years ago. Since then I have been dx with arthritis in my right hip, degenerative disk disease, a pituitary tumor, carpal tunnel...blah, blah, blah. I have NO DOUBT after all the reading I've done, that I have MS. I had the MRI's done when they discovered the tumor, w and w/o contrast. When I asked about MS the neurologist completely dismissed it because she said there was no indication of lesions. I now read that 5% of cases present WITHOUT lesions showing on MRI's. HOW DO YOU GET ANYONE TO LISTEN? I am so completely frustrated. Working has become so difficult. I am currently off for 1 week because of the vertigo I've been experiencing. My balance has gone completely downhill in the last 2 months. Feel like my head is constantly swimming. My thought process is COMPLETELY off. When I'm in a meeting at work I can't even find the words I want to use to express my opinion....when I can even figure out what my opinion is! I am in Central PA. If anyone knows of a neurologist specializing in MS PLEASE inform me. I appreciate any help I can get. Thank you.

Hi and welcome to NeuroTalk. :welcome_sign:

How does "arthritis in my right hip, degenerative disk disease, a pituitary tumor, carpal tunnel and fibromyalgia relate to "no doubt I have MS."

Fibromyalgia can cause cognitive problems, also known as Fibrofog and dizziness as well as many other symptoms. You may want to learn more about what you have been diagnosed with for a better understanding.

I was one of those 5% diagnosed without lesions. I didn't have a problem being listened to, it was quite obvious to my doctors something was very wrong. Initially a brain tumor was suspected. I was diagnosed based on a positive lumbar puncture, neuro exam (I completely failed) and symptoms. That was a long time ago.

There is a diagnostic criteria for MS --- the McDonald Criteria. The MRI is a large part of that criteria. Your doctors are listening but you are not meeting the criteria. You may want to research the McDonald Criteria for a better understanding how this disease is diagnosed.

Hi Sherric...Welcome!!:hug:

Hello Everyone,

I am a newbie. Have been having many sensory and cognitive issues; being followed by a MS specialist who thinks I have MS but didn't find "the smoking gun" yet.

My MRI's show lesions in the subcortical and periventricular area.

I hope to find answers soon. Looking forward to getting to know everyone :)

Maria

Hello Everyone
 

I'm Dan,
I survived a cerebral hemmorrage of the right hemisphere on Aug. 29, 2010. I am still recovering, as I lost all of my abilities and had to relearn everything. I am a licensed architect so there's lots of relearning to do. I was recommended to this site by my good friend Carl Hernz who thought I might benefit from the support this site this to offer. I look forward to getting to know y'all. Happy Saturday :)

Hi Dan and welcome to NeuroTalk
Just to let you know this thread is on our Multiple Sclerosis forum, so here is our general New Member Introductions forum where you may want to post as well :)
http://neurotalk.psychcentral.com/forum88.html

First time here.
 

I'm new on this. 30 year old female, newlywed. And really concerned.

Started having symptoms of feet/hand tingling in the (hot) shower over a month ago, then started noticing that it occurred in hot weather and even when exercising. That made me concerned, that its affecting my everyday life now. (1 month prior to that I was on my honeymoon in the tropics- think hot weather- and had no problems).

2 years ago I had episodes (almost daily) of extreme dizziness/vertigo to where I thought I'd black out but never did. It lasted almost a month and then vanished. During that time I had a brain MRI (normal) and cardiology workup (normal). I forgot about it completely until I looked up my current symptoms and 'MS' appeared.

Now the tingling/pain is even more sensitive and frequent (hard to do dishes). I'm also in much pain- I wake up with leg pain/soreness, that gets better with motrin. I got a massage yesterday and the therapist was amazed by how tense my muscles were all over my body. I'm not working out as much anymore so theres no reason for my muscles to be tense.

I just got married a few months ago, and have a job where coordination is necessary. I'm extremely concerned that I have MS, and scared to get the diagnosis.
I don't have disability insurance, and read that I should make sure I have it before I get diagnosed- this process may take another 2 months for me.

In the meantime I'm terrified and still experiencing daily symptoms. I've told my new husband (only a little bit, don't want to concern him too much yet), and not any family, as I don't want them to worry. So I'm going through this alone, and have had crying breakdowns when I'm alone and this happens. This waiting time is really difficult- I'd rather have a diagnosis or not- and deal with it either way.

Any thoughts/suggestions? Does this sound like MS to you?

Hello Concerned and welcome to NeuroTalk.:)

It sure sounds like MS to me, but what do I know:D I hope your Med team/Neuro can come through with a DX for you so that you may start an MS Med. In the meantime, there are meds that may help treat your symptoms.

You can't do this alone. There is no time like the present to find out what new Hubby is made of. I just know that he will love and support you.:cool:

Stay with us and let us help you through the DX process. If you need to vent about your fears, this is the place. We do understand and feel what you feel.

:hug::hug: